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Similar organisations to HEMOCHROMATOSIS INFORMATION SOCIETY

Community Rebuilding
  • Alliance/Advocacy Organizations

  • 46.

Wilson Disease Association

Wilson disease is a genetic disorder of having excessive copper accumulation in the liver or brain that is fatal unless detected and treated Welcome to the official fan page of The Wilson Disease Association International.

Social Rank

5942

Location

New York

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Community Rebuilding
  • Heart and Circulatory System

  • 47.

Trey Has Heart Foundation

To promote awareness and educate the public about Coarctation of the aorta, and the importance of early detection in children by speaking to students and families at local area school assemblies, youth sporting events and community health fairs, and the physical, emotional and financial toll this disease can have on affected children and their families.

Location

Ozone Park

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Community Rebuilding

The Global Foundation for Peroxisomal Disorders

The GFPD's mission is to improve the lives of individuals with peroxisomal disorders by funding research, championing scientific collaboration, and empowering families and professionals through educational programs and support services.

Social Rank

3600

Location

Tulsa

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Community Rebuilding
  • Alzheimer's

  • 49.

Ftd Disorders Registry LLC

The Registry is an online database to collect information from those affected by all types of frontotemporal degeneration (FTD).

Social Rank

1663

Location

King of Prussia

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Community Rebuilding

THE MARFAN FOUNDATION INC .

The Marfan Foundation works to save lives and improve the quality of life of individuals with Marfan syndrome and other genetic aortic conditions.

Social Rank

31219

Location

Port Washington

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Community Rebuilding
  • Brain Disorders

  • 51.

JOUBERT SYNDROME & RELATED DISORDERS FOUNDATION

The Joubert Syndrome & Related Disorders Foundation supports those affected by Joubert syndrome and related disorders.

Social Rank

4737

Location

Rocky River

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Community Rebuilding
  • Alliance/Advocacy Organizations

  • 52.

Young Genetic Stroke Alliance

Raising awareness and educating the community on all things related to this rare disease.

Location

Hanscom AFB

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Community Rebuilding
  • Heart and Circulatory System

  • 53.

TEXAS CENTRAL HEMOPHILIA ASSOCIATION INC

TexCen provides education, advocacy, and community to individuals living with bleeding disorders across Northern Texas.

Social Rank

1346

Location

DALLAS

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Community Rebuilding
  • Hospitals and Primary Medical Care Facilities

  • 54.

Indiana Hemophilia & Thrombosis Center Inc

Request An Appointment Find A Doctor Patient Portal Pay My Bill Were here for you and your family for life.

Location

INDIANAPOLIS

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