• Epilepsy

• 46.

Where Theres A Will Theres A Cure

We are going to cure X-Linked Myotubular Myopathy.

• Hospital (Specialty)

• 47.

Translational Pulmonary and Immunology Research Center

TPIRC is a rare disease institute focused on 6 orphan conditions: Food Allergies, Cystic Fibrosis, Br TPIRC IS A NON-PROFIT CLINICAL CARE AND RESEARCH CENTER THAT FOCUSES ON THE DEVELOPMENT OF CUTTING-EDGE, INDIVIDUALIZED TREATMENT PROTOCOLS FOR RARE AND ORPHAN DISEASES UTILIZING COMPREHENSIVE DIAGNOSTIC TOOLS AND PATIENT DRIVEN RESEARCH.

• Fund Raising and/or Fund Distribution

• 48.

BATTEN DISEASE SUPPORT AND RESEARCH ASSOCIATION

Batten Disease Support, Research, & Advocacy.

• Fund Raising and/or Fund Distribution

• 49.

The Telomere Project

The Telomere Project is dedicated to funding lifesaving efforts for those affected by telomere syndromes, in particular, idiopathic pulmonary fibrosis IPF The Telomere Project is dedicated to funding lifesaving efforts for those affected by telomere syndromes TS in particular those which result in shortened telomeres or low telomere promotion.

• Specifically Named Diseases

• 50.

Jansens Foundation

Founder & Executive Director of The Jansen's Foundation.

• Specifically Named Diseases

• 51.

Watch 4 Wegeners

It could save a life. Home Sarahx27s Story About Our Board Contact Us Run To Raise Testimonials More Watch 4 Wegeners It Could Save a Life Our daughter Sarah River Whitmire was a college student in pharmacy school when she died suddenly at age 20 from complications of undiagnosed Granulomatosis with Polyangiitis GPA also known as Wegener39s Disease a rare autoimmune disease that no one knew she had.

SICKLE CELL DISEASE FOUNDATION

Providing education and life-enhancing programs to individuals with sickle cell disease.

CELIAC DISEASE FOUNDATION

Official account for the Celiac Disease Foundation, the leading global public voice for celiac disease.

• Nonmonetary Support N.E.C.*

• 54.

CURE JM FOUNDATION

Cure JM Foundation's mission is to find a cure and better treatments for Juvenile Myositis (JM) Your JM Support Community Cure JM is powered by a community of families who have successfully navigated the JM journey and are here to help you do the same.