Ella Jewell Inc

Raise awareness in the area of Neutropenia and Funds to put towards research for Neutropenia and childhood bone marrow failure disorders; to one day find a cure and make a difference.

• Fund Raising and/or Fund Distribution

• 425.

COALITION TO CURE CHD2 INC

Fighting for our kiddos, and others, with CHD2-related neurodevelopmental disorders.

• Specifically Named Diseases

• 426.

Abetalipoproteinemia and Related Disorders Foundation

Abetalipoproteinemia and Related Disorders Foundation is a non-profit, volunteer organization that provides guidance on needed scientific research, diagnosis, and management of abetalipoproteinemia and related hypolipidemias.

• Birth Defects, Genetic Diseases

• 427.

Uba5 Foundation

This page is to help raise awareness and connect with others that have been diagnosed UBA5 gene mutation.

• Birth Defects, Genetic Diseases Research

• 428.

Lottie's Light Foundation

MISSION: Lottie's Light Foundation exists to illuminate a cure for rare diseases starting with CerTra Syndrome.

• Alliance/Advocacy Organizations

• 429.

Jansen De Vries Syndrome Foundation

The Jansen de Vries Syndrome (JdVS) Foundation is a nonprofit, tax-exempt organization as defined in section 501(c)(3) of the Internal Revenue Code and, as such, contributions to JdVS Foundation are tax-deductible.

• Nerve, Muscle, and Bone Diseases

• 430.

Northeast ALS Consortium Inc

The Northeast ALS Consortium (NEALS) is an international, independent, non-profit group of researchers who collaboratively conduct clinical research in ALS Our mission is to translate scientific advances into clinical research and new treatments for people with Amyotrophic Lateral Sclerosis (ALS) and Motor Neuron Disease (MND) as rapidly as possible, in partnership with the diverse population of people living with ALS, and all those engaged in ALS research.

• Biological, Life Science Research (includes Marine Biology, Physiology, Biochemistry, Genetics, Biotechnology, etc.)

• 431.

Cystic Fibrosis Foundation Therapeutics Inc

Recognized globally, the CF Foundation has led the way in the fight against cystic fibrosis, fueling extraordinary medical and scientific progress.

• Birth Defects, Genetic Diseases

• 432.

Iqsec2 Research and Advocacyfoundation

Welcome to IQSEC2. ORG Research and Advocacy Foundation MISSION STATEMENT Vision In the next 10 years we will dramatically improve the quality of life for those affected by IQSEC2 mutations through 1 the establishment and dissemination of standard treatment and therapy protocols to medical practitioners and therapists worldwide 2 support of research and development of new and innovative treatments for IQSEC2 related diseases and 3 uplift support all loved ones of those affected by IQSEC2 through an advocate community and its allies.