Episcopal Health Services, Inc.

Episcopal Health Services is a full service health system serving the entire Rockaway peninsula and the Five Towns communities.

• Birth Defects, Genetic Diseases

• 416.

NATIONAL TAY SACHS & ALLIED DISEASES ASSOCIATION INC

National Tay-Sachs & Allied Diseases Association (NTSAD) leads the worldwide fight to treat and cure Tay-Sachs, Canavan, GM1, and Sandhoff diseases.

• Unknown

• 417.

Usher Syndrome Society Inc

A nonprofit that uses arts, educational events, & collaboration to raise awareness for Usher syndrome The Usher Syndrome Society is a non-profit that uses the arts, educational events, and collaboration to raise awareness and funds for treatments and a cure for Usher syndrome.

International Eosinophil Society Inc

The IES is an organization of scientists and clinicians interested in the eosinophil, a blood cell strongly associated with many diseases.

• Single Organization Support

• 419.

Stand4Lyme Foundation

STAND4LYME'S MISSION IS PAVING A MEDICAL PATH TO WELLNESS FOR PATIENTS AT ALL STAGES OF LYME DISEASE.

Dlg4 Research Fund

DLG4-related Synaptopathy / SHINE Syndrome *Managed by the board of the DLG4 SHINE Foundation A page for people interested in learning more about DLG4-related Synaptopathy / SHINE Syndrome *Managed by the board of the DLG4 SHINE Foundation Mission To find specific treatment options and a cure for DLG4 patients by building a collaborative network of patients, families, clinicians and scientists that will work together to raise awareness and accelerate the understanding, diagnosis and treatment of DLG4 related synaptopathy.

UNIVERSITY HEALTH SYSTEM INC

East Tennessee's academic medical center.

• Fund Raising and/or Fund Distribution

• 422.

CURE RARE DISEASE INC

Nonprofit biotech leading a global collaboration to develop life-saving medicines for rare diseases Revolutionizing UltraRare Disease Treatment through Innovation and Collaboration Revolutionizing UltraRare Disease Treatment through Innovation and Collaboration What Wex27re Working Towards We envision a future where every patient has access to treatment.

• Alliance/Advocacy Organizations

• 423.

CGD ASSOCIATION OF AMERICA INC

We are an independent, nonprofit organization that is committed to advocating for patients and carriers with CGD.