HYPERSOMNIA FOUNDATION

We engage, inform & champion our global community to improve the lives of people w/ #hypersomnia & related #sleep disorders.

• Management & Technical Assistance

• 416.

Pathways Corp

To elevate the patient's voice to increase access to care and eliminate bias by bringing stakeholders together Home Our Team Events Initiatives Partners Media Kit Contact More Its Time to Listen to the Rare Disease Community.

• Arts, Cultural Organizations - Multipurpose

• 417.

Amanda Foster Foundation

Amanda Foster Foundation VIRTUAL NONPROFIT FOR GENEALOGY GENETIC RESEARCH AND COMMUNITY SUPPORT infoAmandaFoster.

• Single Organization Support

• 418.

Z & Z Portrait House Foundation Inc

Z Z Portrait House 707 8888138 707 8888138 Z Z Portrait House Every Brick tells a story ZZ Portrait House A 501 c3 Non Profit Organization Meet the Z Z Portrait House Team Our Founder Zina Lee the visionary founder of Z Z Portrait House has dedicated over 25 years to the care industry championing the needs of vulnerable populations.

• Public Foundations

• 419.

TNPO2 Foundation

TNPO2 FOUNDATION WORKED TO ACCELERATE ACCESS TO A CURE FOR ANY "N-OF-1" PATIENT.

• Alliance/Advocacy Organizations

• 420.

KIF1A.ORG

We connect families affected by KIF1A and relentlessly work to accelerate research.

• Human Service Organizations

• 421.

Chd Tablet Talk Foundation

CHD TABLET TALK FOUNDATION® A 501c3 Nonprofit Organization Keeping children with complex congenital heart disease (CHD) connected and engaged by providing resources, education, support, and mentorship 💙❤️ © 2020 All rights reserved The CHD Tablet Talk mission is to keep children with complex CHD, who are experiencing lengthy hospital stays, connected and engaged while they battle their illness.

• Birth Defects, Genetic Diseases

• 422.

BPAN WARRIORS

Community resources, research and CONNECTION for BPAN Warrior families (WDR45, NBIA, Rare Disease, Parkinsons, Dementia, Epilepsy, Neurodegeneration, Genetics) BPAN Warriors is a growing international community of individuals who have loved ones directly affec BPAN WARRIORS CONNECT COLLABORATE CURE HOME RESEARCH PATIENT RESOURCES OUR TRIBE OUR PARTNERS DONATE RARE POV BLOG More 414 909BPAN RAREX unveils plan to radically change data collection and sharing to accelerate advances for patients in rare disease How One Rare Disease Advocate Learned to Look Across Diseases Study Makes Economic Case for Benefits of Data Sharing to Improve Diagnosis and Treatment of Rare Disease Patients Harnessing Machine Learning to Improve Diagnosis and Treatment of Rare Diseases Making Collaboration the Rule Rather than the Exception Why Data Sharing Is Critical for Accelerating Progress in Rare Disease PatientPowered Registry Boosts the Study of a Rare Disease What is Data Governance.

SPINAL MUSCULAR ATROPHY RESEARCH TEAM

Friends and Family Fighting for a cure for SMA and other Neuromuscular Diseases.