HEREDITARY ANGIOEDEMA ASSOCIATION INC

The US HAEA is a non-profit advocacy and research organization serving people with HAE.

• Other Medical Research N.E.C.

• 389.

Mircore

miRcore's mission is to advance science and medicine by advocating personalized medicine and democratizing medical research.

THE MARFAN FOUNDATION INC .

The Marfan Foundation works to save lives and improve the quality of life of individuals with Marfan syndrome and other genetic aortic conditions.

• Specifically Named Diseases

• 391.

SETBP1 Society

President of SETBP1 Society and Parent Advocate for SETBP1-HD SETPB1 Society's mission is to provide support to individuals with SETBP1 haploinsufficiency disorde Our Mission is to provide support to individuals with SETBP1 disorder and their families, to promote discussion and fund research, and to bring awareness and education to the public.

• Cancer

• 392.

SOTERIA Precision Medicine Foundation Inc

We are a non-profit whose mission is to support a superior approach to cancer treatment, where the patient is at the center of globally curated resources.

• Fund Raising and/or Fund Distribution

• 393.

The Telomere Project

The Telomere Project is dedicated to funding lifesaving efforts for those affected by telomere syndromes, in particular, idiopathic pulmonary fibrosis IPF The Telomere Project is dedicated to funding lifesaving efforts for those affected by telomere syndromes TS in particular those which result in shortened telomeres or low telomere promotion.

Texas Neurofibromatosis Foundation

We’re a community of NF patients, parents, doctors and advocates who want to listen, support or help you as we can.

• Public Foundations

• 395.

Greenwood Genetic Center Foundation

Clinical geneticists, laboratory diagnosticians, researchers, and educators with a passion for patient care.

National Ataxia Foundation Incorporated

Our mission is to accelerate the development of treatments and a cure while working to improve the lives of those living with Ataxia.