Cornelia de Lange Syndrome Foundation, Inc.

Cornelia de Lange Syndrome, promoting research & providing support to individuals with CdLS & their families 860.

• Epilepsy Research

• 389.

Bridge the Gap

SYNGAP1 Foundation is a legacy page dedicated to preserving the work and mission of our 100% charitable nonprofit in the USA, focused on #SYNGAP1 To serve, educate and fund research for families coping with the effects of SYNGAP mutations.

C2Life Foundation

END HUNGER & ELIMINATE CHRONIC DISEASE CAUSED BY POOR NUTRITION.

• Birth Defects, Genetic Diseases Research

• 391.

Channeling Hope Foundation

Channeling Hope Foundation A community of researchers and families driven to advance care and develop treatments for those affected by NALCNrelated disorders.

• Specifically Named Diseases

• 392.

Sisters Hope Foundation for Hereditary Diffuse Leukoencephalop

We are dedicated to amplifying patient voices, and one day meeting the first survivor of ALSP.

• Alliance/Advocacy Organizations

• 393.

Ctx Alliance NFP

Providing education, support, advocacy, and promoting research for CTX patients, their families, and medical professionals who treat and study this rare disease Providing education, support, advocacy, and promoting research for CTX patients, their families, and medical professionals who treat and study this rare disease.

• Fund Raising and/or Fund Distribution

• 394.

Dp Endeavors

We’re raising money to combat the scourge of pediatric brain cancer, one dick joke and one chimichanga at a time.

• International Relief

• 395.

HUGS FOUNDATION INC

HUGS provides free surgical care to children and adults suffering from a facial deformity.

• Fund Raising and/or Fund Distribution

• 396.

LEVI LEGACY

Levi's Legacy is a 501(c)3 organization founded by a heart family after losing their son on 08/02/21.