• Alliance/Advocacy Organizations

• 388.

CONGENITAL HYPERINSULINISM INTERNATIONAL

Improving the lives of babies, children, and adults with hyperinsulinism (HI) by supporting HI families, research, and awareness to prevent brain damage & death CHI is dedicated to improving the lives of people living with Congenital Hyperinsulinism.

• Diseases, Disorders, Medical Disciplines N.E.C.

• 389.

U R Our Hope

Non-profit serving individuals with undiagnosed & rare disorders through education, advocacy, and support in order to bring hope through knowledge, empowerment Assisting those with undiagnosed or rare disorders at any age and any stage.

HOPE IN FOCUS INC

Transforming the lives of those affected by blindness from inherited retinal disease.

• Specifically Named Diseases

• 391.

Wylder Nation Foundation

WARRIORS in the Fight Against Lysosomal Storage Disorders.

• Educational Services and Schools - Other

• 392.

Blood Project Inc

TBP communicates the wonders of the #blood and employs blood as a prism to explore the human body in health and disease https://t.

• Cultural/Ethnic Awareness

• 393.

May5Foundation

The May5Foundation and founder Dr. Alexia Mays are committed to supporting the communities of sickle cell, grief & loss, thru research ,advocacy &awareness The May5Foundation is centered in the values of dedication to education,community and service WE DO AMAYSING THINGS Programs and Events Support Our Efforts Who We Are More Community Events 2024 Warrior of The Year .

• Specifically Named Diseases Research

• 394.

Aubrey Osullivan Foundation

Founded by two parents dedicated to drastically accelerating RBM research.

• Fund Raising and/or Fund Distribution

• 395.

ASXL RARE RESEARCH ENDOWMENT FOUNDATION

Supporting research and education to improve the quality of life for those living with ASXL-related disorders #BohringOpitz #ShashiPena and #BainbridgeRopers We support research and education to improve the lives of families living with ASXL syndromes.

• Birth Defects, Genetic Diseases

• 396.

THINKGENETIC FOUNDATION INC

Helping those living with a genetic disease by shortening the time to diagnose a genetic condition and providing actionable, patient-focused guidance.