• Alliance/Advocacy Organizations

• 379.

Team Telomere

An international community for telomere biology disorders.

• Fund Raising and/or Fund Distribution

• 380.

EBSTEINS ANOMALY FOUNDATION INC

The goal of the Ebstein's Anomaly Foundation is to fund research in order to advance the diagnosis, treatment and prevention of this rare congenital heart defect.

SNYDER-ROBINSON FOUNDATION

The Snyder-Robinson Foundation is a nonprofit organization with a mission to advance research relating to Snyder-Robinson Syndrome (SRS) & related disorders The Snyder-Robinson Foundation is a tax-exempt organization formed to advance medical and scientific The mission of The Snyder-Robinson Foundation is to find treatments or a cure for Snyder-Robinson Syndrome (SRS), and for related charitable, educational, and scientific purposes.

HASHIMOTOS ENCEPHALOPATHY SREAT ALLIANCE

𝙋𝙧𝙤𝙫𝙞𝙙𝙞𝙣𝙜 𝙥𝙖𝙩𝙞𝙚𝙣𝙩 𝙨𝙪𝙥𝙥𝙤𝙧𝙩 𝙩𝙤, 𝙥𝙪𝙗𝙡𝙞𝙘 𝙖𝙬𝙖𝙧𝙚𝙣𝙚𝙨𝙨 𝙤𝙛, & 𝙢𝙚𝙙𝙞𝙘𝙖𝙡 𝙧𝙚𝙨𝙚𝙖𝙧𝙘𝙝 𝙛𝙤𝙧 𝙃𝙀/𝙎𝙍𝙀𝘼𝙏 & 𝙎𝘼𝙀 Providing patient support to, public awareness of, and medical research for Hashimoto's Encephalopathy (HE)/SREAT and Seronegative Autoimmune Encephalitis (SAE).

• Nonmonetary Support N.E.C.*

• 383.

Kidz1Stfund Inc

Established by Coach Jimbo Fisher & Candi Fisher after their son was diagnosed with Fanconi anemia.

• Birth Defects, Genetic Diseases Research

• 384.

Fam177a1 Research Fund

Founder and President, FAM177A1 Research Fund The mission of the FAM177A1 Research Fund is to improve the lives of those affected by FAM177A1 Associated Disorder through research and development of transformative therapies.

I-ACT for Children

We act because every child with a medical need deserves the best chance possible.

• Alliance/Advocacy Organizations

• 386.

Young Genetic Stroke Alliance

Raising awareness and educating the community on all things related to this rare disease.

• Fund Raising and/or Fund Distribution

• 387.

Gamers for Cures

Home of the annual Board Game Marathon to benefit Turner Syndrome Society of the Carolinas and TSSUS Founded by Dan @geekjockdan Gamers For Cures A charity for gamers to give back to the community Main menu Post navigation Thanks to everyone for an amazing Gamers For Cures 2024.