• Museums & Museum Activities

• 370.

Prader Willi Association of New England Inc

PWS is a non-inherited genetic disorder which is associated with a random deletion of the 15th chromosome.

NephCure

Fighting for a world where all who are affected by rare, protein-spilling kidney disease are connected to new and better treatments — and one day, a cure.

• Diseases, Disorders, Medical Disciplines N.E.C.

• 372.

National Niemann-Pick Disease Foundation

National Niemann-Pick Disease Foundation The NNPDF offers support and guidance to families and patients of those affected by Niemann-Pick Dise Mission: We are a non-profit group dedicated to supporting and empowering patients and families affected by Niemann-Pick disease through education, collaboration and research.

National Jewish Health

News, health info & more from National Jewish Health, the leading respiratory hospital in the nation Our mission since 1899 is to heal, to discover, and to educate as a preeminent health care institution.

• Management & Technical Assistance

• 374.

Pathways Corp

To elevate the patient's voice to increase access to care and eliminate bias by bringing stakeholders together Home Our Team Events Initiatives Partners Media Kit Contact More Its Time to Listen to the Rare Disease Community.

Odylia Therapeutics Inc

Nonprofit biotech accelerating drug development for #rarediseases.

• Cancer

• 376.

Hereditary and Genetic Cancer Foundation Inc

support when you need it most Resources for Individuals and Families with Cancer Causing Genetic Conditions support when you need it most Resources for Individuals and Families with Cancer Causing Genetic Conditions FALL FUNDRAISERTuesday October 10 2023 Our organization is committed to improving the lives of those in need and to support caregivers patients and families.

• Alliance/Advocacy Organizations

• 377.

CARING AMBASSADORS PROGRAM INC

Our mission is to improve the lives of patients and communities by empowering and educating them to be advocates for their own health.

• Specifically Named Diseases Research

• 378.

INTERNATIONAL SOCIETY FOR MANNOSIDO

ISMRD is the leading advocate for families affected by a Glycoprotein Storage Disease.