• Eye

• 361.

HEAR SEE HOPE

We are a not for profit in search of funds to sustain the fight against Usher syndrome.

• Fund Raising and/or Fund Distribution

• 362.

Renu Syndrome United

ReNU Syndrome Variants in RNU42 Uncovered as One of the Most Prevalent Causes of Neurodevelopmental Disorders Discovery Renews Hope for Affected Families Worldwide Characteristics may include Developmental Motor and Intellectual Delays Absent or Delayed Speech and Language Seizures Brain Abnormalities Small Head Size Distinct Facial Features Low Muscle Tone and Drooling Autism Spectrum Disorder Short Stature BoneSkeletal Anomalies Vision Issues and more More Information Big thanks to the researchers clinicians geneticists in these articlesfor this longawaited revelation.

• Fund Raising and/or Fund Distribution

• 363.

Martin Mueller Iv Achalasia Awareness Foundation

A Non-profit foundation created to raise awareness for the disease Achalasia, educate, and raise funds for Achalasia research.

Friends of Aravind

Aravind Eye Foundation is a non profit organization helping Aravind eyecare spread its mission of preventing needless blindness across developing nations Aravind Eye Foundation, formerly Friends of Aravind, was established in 2000 to help Aravind Eye Care System spread its sustainable model of highly efficient and effective eye care to India’s rural populations and other developing countries.

• Fund Raising and/or Fund Distribution

• 365.

Sdhb Coalition Inc

Our mission is to educate healthcare professionals and patients on the SDHB genetic germline mutation as well as its role and impact in this orphan disease SEE SCHEDULE O ABOVE Vision Mission Our mission is to educate healthcare professionals and patients on the SDHB genetic germline mutation as well as its role and impact in this orphan disease namely Pheochromocytoma and Paraganglioma.

• Patient Services�Entertainment, Recreation

• 366.

Forever Smiles Foundation

Forever Smiles Foundation Our Mission is Simple To Restore Smiles and Hope The Forever Smiles Foundation is dedicated to transforming lives through comprehensive cleft and craniofacial care with a global commitment to alleviating the financial burden many families face.

• Neurology, Neuroscience

• 367.

Inadcure Foundation Inc

The INADcure Foundation is a 501c3 nonprofit charity whose mission is to support the development of treatments, including a cure, for Infantile Neuroaxonal Dystrophy (INAD) and other forms of PLA2G6-related neurodegeneration (PLAN).

For Ian Foundation

Dedicated to funding a cure for SDH deficient and childhood cancers FOR IAN FOUNDATION Dedicated to finding treatments for rare childhood cancersGREEN FOR IAN 2025 February 13 2025Learn MoreFranko Rahimi Recounts Experience of Losing His Child40000 grant awarded to Dr.

• Alliance/Advocacy Organizations

• 369.

BELOVEDS A NANIA FOUNDATION INC

BELOvEDS, A Nania Foundation Inc. is a recognized 501(c)(3) non-profit organization committed to raising awareness of, and research funding for, Vascular Ehlers-Danlos Syndrome (vEDS).