• Alliance/Advocacy Organizations

• 361.

JONAHS JUST BEGUN-FOUNDATION TO CURE SANFILIPPO IN

Jonah's Just Begun – Foundation to Cure Sanfilippo Inc.

• Fund Raising and/or Fund Distribution

• 362.

HOPE FOR TRISOMY 13 and 18 INC

Hope for Trisomy 13 and 18 is a 501(c)(3) raising awareness and supporting families.

• Neurology, Neuroscience

• 363.

PCDH19 Alliance

Our mission is to improve the lives of children and families who are affected by PCDH19 Epilepsy.

BARROW NEUROLOGICAL FOUNDATION

Our mission is to be the catalyst of our donors’ passion for transformation by providing the resources for Barrow Neurological Institute to achieve its mission.

WORLD CRANIOFACIAL FOUNDATION

We are the WorldCF, Healing Children's Faces Welcome.

• Management & Technical Assistance

• 366.

Pathways Corp

To elevate the patient's voice to increase access to care and eliminate bias by bringing stakeholders together Home Our Team Events Initiatives Partners Media Kit Contact More Its Time to Listen to the Rare Disease Community.

• Fund Raising and/or Fund Distribution

• 367.

Tango2 Research Foundation Incorporated

Our mission is to lead the way in finding a cure for TANGO2 related disease.

• Birth Defects, Genetic Diseases Research

• 368.

THE NATIONAL FRAGILE X FOUNDATION

News and information from the National Fragile X Foundation about Fragile X syndrome, FXTAS, FXPOI and the other Fragile X-associated disorders Since 1984, the National Fragile X Foundation has been providing knowledge, resources and tools to families living with Fragile X and the professionals support them throughout their lifespan.

• Nerve, Muscle, and Bone Research

• 369.

ALS CURE PROJECT INC

The purpose of the ALS CURE Project is to provide laser focused leadership and sponsor scientific re Science Technology Review Joining the Fight to Cure Neurodegenerative Disease Bridget takes on the New York marathon in Gretchenx27s honor In hopes of running my first read possibly only marathon I was miraculously accepted into the 2024 NYC Marathon off of the lottery on my first try.