• Private Grantmaking Foundations

• 37.

Gavin R Stevens Foundation

Our mission is to raise awareness and increase funding for research, to find a treatment and cure for blindness, focusing on Leber's Congenital Amaurosis (LCA) AWARENESS OF BLINDNESS FROM LCA var ANScustomeridbce0d824930843069bb3f3f1bcfd4038 Web Ecommerce Our Sponsors carryingcolin.

HSAN1E Society

Patient advocacy organization fighting for awareness and research of HSAN1E #RareDisease #Hearingloss #Neuropathy #Dementia #neurological disease HSAN1E Society’s purpose is to create awareness of HSAN1E, to provide emotional support to families affected by HSAN1E and help facilitate research.

• Brain Disorders

• 39.

JOUBERT SYNDROME & RELATED DISORDERS FOUNDATION

The Joubert Syndrome & Related Disorders Foundation supports those affected by Joubert syndrome and related disorders.

• Down's Syndrome

• 40.

MONTANA DOWN SYNDROME ASSOCIATION

Our mission is to honor and nurture the extraordinary lives of people with Down syndrome by advocating for them as well as providing educational, financial, social, and emotional support.

• Alliance/Advocacy Organizations

• 41.

Coffin-Siris Syndrome Foundation

Coffin-Siris Syndrome Foundation is a 501c3 that exists to connect, support, and inform those affected by Coffin-Siris Syndrome and related disorders and promote related research.

Kruzn for A Kure Foundation

Kruzn For A Kure Foundation is a non-profit organization funding research for an extremely rare genetic disease & fatal type of dwarfism, #SIOD.

• Fund Raising and/or Fund Distribution

• 43.

Tbc1D24 Foundation

Tbc1d24 foundation is a research organization and connecting site for caregivers, families, and those diagnosed with Tbc1d24 mutations.

• Birth Defects, Genetic Diseases

• 44.

Tatton Brown Rahman Syndrome Community Inc

The Tatton Brown Rahman Syndrome Community supports research and educates individuals with TBRS and their families, friends, and service providers.

• International Relief

• 45.

FRIENDS OF IPWSO

Friends of IPWSO raises money to improve the lives of children and adults who are born with Prader-Willi Syndrome.