• Other Philanthropy, Voluntarism, and Grantmaking Foundations N.E.C.

• 37.

INTERNATIONAL CHILDRENS ANOPHTHALMIA NETWORK INC

ICAN a voluntary not for profit organization, is a group of families and professionals dedicated to lending support to individuals who want to learn more about microphthalmia and anopthalmia and associated genetic counseling.

TEXAS PRADER-WILLI ASSOCIATION

Our mission is to enhance the quality of life for all those affected by Prader-Willi Syndrome through education, support and advocacy.

• Diseases, Disorders, Medical Disciplines N.E.C.

• 39.

LYMPHANGIOMATOSIS & GORHAMS DISEASE ALLIANCE INC

Patient-driven solutions for complex lymphatic anomalies: GLA, GSD, KLA, CCLA • Support-Research-Education • Somatic mutations PIK3/mTor & RAS/MAPK pathways Patient advocacy group dedicated to patient driven solutions for complex lymphatic anomalies We connect patients and families to peers and networks of care, partner to advance new research, and educate the medical community to help all people navigating complex lymphatic anomalies have hope for a healthier tomorrow.

• Birth Defects, Genetic Diseases

• 40.

Sickle Cell Association of Houston, Inc,

Providing services and supportive resources to those suffering from this overwhelming disease.

• Diseases, Disorders, Medical Disciplines N.E.C.

• 41.

National Niemann-Pick Disease Foundation

National Niemann-Pick Disease Foundation The NNPDF offers support and guidance to families and patients of those affected by Niemann-Pick Dise Mission: We are a non-profit group dedicated to supporting and empowering patients and families affected by Niemann-Pick disease through education, collaboration and research.

• Birth Defects, Genetic Diseases

• 42.

Springer Family Foundation Inc

Extra To Love aims to empower the Trisomy 13 and 18 communities through connection, financial support and education.

• Philanthropy/Charity/ Voluntarism Promotion (General)

• 43.

Leo S Love and Legacy Inc

We raise funds to provide college scholarships to pediatric cancer families struggling with expenses due to treatment Leos Love and Legacy Inc.

Alagille Syndrome Alliance

The Alagille Syndrome Alliance is an international support and advocacy network for people with ALGS and their families.

EHLERS-DANLOS SOCIETY

Advancing and accelerating research and education in Ehlers-Danlos syndromes and HSD.