• Birth Defects, Genetic Diseases

• 37.

International Rett Syndrome Association, Inc.

We are transforming lives every day in our fight to treat and cure Rett syndrome and better the lives of families living with this devastating disorder.

Foxg1 Research Foundation

FOXG1 syndrome is a childhood neurological genetic disorder and is a key to understanding many brain disorders.

Kruzn for A Kure Foundation

Kruzn For A Kure Foundation is a non-profit organization funding research for an extremely rare genetic disease & fatal type of dwarfism, #SIOD.

• Birth Defects, Genetic Diseases Research

• 40.

Dyrk1a Syndrome Us

Official Facebook Page for DYRK1A Syndrome International Association a nonprofit for DYRK1A Syndrome.

• Fund Raising and/or Fund Distribution

• 41.

Life for Liam and Friends Foundation

Mission to support families who are impacted by NPC and help find a cure through connecting NPC families, spreading awareness, and supporting medical research.

• Public Foundations

• 42.

TNPO2 Foundation

TNPO2 FOUNDATION WORKED TO ACCELERATE ACCESS TO A CURE FOR ANY "N-OF-1" PATIENT.

• Fund Raising and/or Fund Distribution

• 43.

Believe in A Cure, Inc.

Believe in a Cure, Inc. is a 501(c)(3) tax-exempt organization whose mission is to: (1) support the care and treatment of individuals diagnosed with FOXG1 Syndrome and similar disorders, as well as to raise public awareness regarding such issues; and (2) support research and development of learnings and methods to improve the qualify of life for patients with such disorders.

• Epilepsy Research

• 44.

Shay Emma Hammer Research Foundation

We’re working to document the first 1000 cases of SCN8A gene variants and connect families Advancing epilepsy awareness.

CANAVAN RESEARCH ILLINOIS

Join the worldwide mission to cure Canavan disease.