• Fund Raising and/or Fund Distribution

• 37.

HOPE STRENGTHENS FOUNDATION

Hope Strengthens Foundation provides critical financial support to individuals and families facing life-threatening illness, disability, or recovering from traumatic injuries.

Lupus Foundation of America, New Jersey Chapter

Lupus Foundation of America is the only national force devoted to solving the mystery of lupus while giving support to those who suffer from its brutal impact.

• Fund Raising and/or Fund Distribution

• 39.

Eleanor Kaplan Foundation Inc

To raise funds and awareness to develop cures for Ultra Rare Neurodegenerative Diseases.

Hwangstrong Foundation

Our son, Jakob Hwang, used to say, "Having cancer isn't hard.

Rarekc Foundation

Our mission is to drive innovation in the diagnosis, care and treatment of rare diseases by connecting and inspiring our community.

• Specifically Named Diseases

• 42.

Sisters Hope Foundation for Hereditary Diffuse Leukoencephalop

We are dedicated to amplifying patient voices, and one day meeting the first survivor of ALSP.

Through Evelys Eyes

Our mission is to empower and assist families with children facing rare medical conditions, providing comfort, guidance, and practical assistance in their unique journeys.

Rare Access Action Project Inc

RARE ACCESS ACTION PROJECT Providing Education Advocacy Access On Behalf of Rare Disease Patients and Families.

• Fund Raising and/or Fund Distribution

• 45.

NORTH CAROLINA RARE DISEASE

Rare Disease Innovations Institute Our Mission RDII is a global nonprofit focused on educating engaging and equipping the rare disease community.