Cooley's Anemia Foundation, Inc.

Cooley's Anemia Foundation is a US nonprofit dedicated to serving people with all forms of the genetic blood disorder #thalassemia.

• Birth Defects, Genetic Diseases

• 353.

Feingold Center for Children

The Genesis Foundation for Children funds clinical care and therapy for children born with complex genetic disorders and rare diseases.

• Nerve, Muscle, and Bone Diseases

• 354.

THE XLH NETWORK INC

The Official Facebook Page of The XLH Network, Inc.

• Medical Specialty Research

• 355.

Cure 2 Children Foundation

Fondazione a carattere internazionale, per la cura delle malattie ematologiche ed oncologiche, la ricerca scientifica ed il trasferimento di know-how It is our vision that every child, whether suffering from leukemia, cancer, thalassemia, or sickle cell disease, has the chance for an affordable and reliable cure, locally.

• Single Organization Support

• 356.

Organic Acidemia Association Corporation

The Organic Acidemia Assn, our mission is to support families, share awareness of organic acid disorders, fund research for better treatments & advocate NBS.

Adcy5.org

Supports #raredisease ADCY5 gene variant population - patients, doctors, researchers.

• Birth Defects, Genetic Diseases

• 358.

STXBP1 FOUNDATION

Non-profit dedicated to ending STXBP1-related disorders, rare neurodevelopmental and epileptic encephalopathies, and spreading awareness of this rare disease.

• Nerve, Muscle, and Bone Research

• 359.

SOFT BONES INCTHE US

Hypophosphatasia education and support for families and caregivers with this rare metabolic bone disease.

• Nerve, Muscle, and Bone Research

• 360.

THE MPN RESEARCH FOUNDATION

We’re a global research foundation stimulating research in pursuit of new treatments, & eventually a cure, for PV, ET, & MF.