Phelan McDermid Syndrome Foundation

Official site of the Phelan-McDermid Syndrome Foundation.

• Birth Defects, Genetic Diseases

• 353.

Upstate Cerebral Palsy Inc

Our mission at Upstate Cerebral Palsy is to provide innovative programs and services that support people and create opportunities to fulfill life choices.

FMD Chat

501c3 organization for those affected by fibromuscular dysplasia—FMD Chat connects patients, family members & providers via social media.

• Fund Raising and/or Fund Distribution

• 355.

Curears A NJ Nonprofit Corporation

Our mission is to spread awareness, connect and provide support to affected families and fund research for the ultra-rare mtARS genes.

• Professional Societies & Associations

• 356.

Sturge-Weber Foundation

Embracing our uniqueness. We may be rare, but we're also one in a million.

• Alliance/Advocacy Organizations

• 357.

Texas Liver Foundation

Our mission is to inform Texans about liver health and liver disease, and to improve their quality of life and outcomes through education, advocacy, and partnership.

• Health Support Services

• 358.

Jake S Got This Inc

Jake's got this is a pay if forward foundation.

Adcy5.org

Supports #raredisease ADCY5 gene variant population - patients, doctors, researchers.

• Health Support Services

• 360.

Parosee Inc

parosee One neighborhood one community.