• Specifically Named Diseases

• 325.

CADASIL Association

cureCADASIL is a non-profit organization committed to curing #CADASIL and improving the quality of life for those affected by this genetic disease.

• Adult, Continuing Ed

• 326.

The Pink Journey Foundation

Our mission is to provide breast cancer education for EVERY woman, help reduce risk, lead to early detection, and save lives.

M Family Foundation Inc

Founded in 2017 M Family Foundation was established to fund research promote early detection educate, & assist families impacted by Ovarian or Pediatric Cancer Raises awareness & provides direct support to families battling ovarian cancer & DIPG/DMG in Florida.

GLOBAL RESOURCE FOR ADVANCING CANCER EDUCATION

Educating, Empowering, and Enabling Cancer Patients Expert-mediated educational cancer info: http://cancerGRACE.

• Cancer

• 329.

Global Access to Cancer Care Foundation

We develop and empower the cancer care specialists required to save lives and beat cancer through training, technology, access, and hope.

• Public Health Programs

• 330.

Ur Medicine Home Care Community Services Inc

One of the nation's top academic medical centers, with an unwavering commitment to health research that translates into real-world cures.

SICKLE CELL DISEASE FOUNDATION

Providing education and life-enhancing programs to individuals with sickle cell disease.

• Birth Defects, Genetic Diseases

• 332.

BPAN WARRIORS

Community resources, research and CONNECTION for BPAN Warrior families (WDR45, NBIA, Rare Disease, Parkinsons, Dementia, Epilepsy, Neurodegeneration, Genetics) BPAN Warriors is a growing international community of individuals who have loved ones directly affec BPAN WARRIORS CONNECT COLLABORATE CURE HOME RESEARCH PATIENT RESOURCES OUR TRIBE OUR PARTNERS DONATE RARE POV BLOG More 414 909BPAN RAREX unveils plan to radically change data collection and sharing to accelerate advances for patients in rare disease How One Rare Disease Advocate Learned to Look Across Diseases Study Makes Economic Case for Benefits of Data Sharing to Improve Diagnosis and Treatment of Rare Disease Patients Harnessing Machine Learning to Improve Diagnosis and Treatment of Rare Diseases Making Collaboration the Rule Rather than the Exception Why Data Sharing Is Critical for Accelerating Progress in Rare Disease PatientPowered Registry Boosts the Study of a Rare Disease What is Data Governance.

LOUISIANA HEMOPHILIA FOUNDATION

To improve the quality of life & assist persons affected by bleeding disorders by providing education, advocacy, support services & research LHF's mission- to improve the quality of life and assist persons affected by inherited bleeding diso Home About LHF About Bleeding Disorders Our Events Camp Bayou Bruisers 2025 Monthly Newsletter Patient Assistance Request Contact More AnnouncementBenjamin Hicks named LHF39s Community Outreach Program Coordinator Im a paragraph.