Browse

Similar organisations to Parry Romberg Foundation Inc

Community Rebuilding
  • Nerve, Muscle, and Bone Diseases

  • 325.

CureDuchenne

We are committed to improving the lives of those affected by Duchenne through accelerating research, improving care and empowering the community.

Social Rank

23274

Location

Newport Beach

View
Community Rebuilding

GBS-CIDP FOUNDATION INTERNATIONAL

To support those affected by GBS|CIDP & variants so each patient obtains an early diagnosis, proper treatment &the opportunity for a full recovery #raredisease Our commitment is to support those affected by GBS, CIDP, MMN & its variants.

Social Rank

19195

Location

Conshohocken

View
Community Rebuilding
  • Diseases, Disorders, Medical Disciplines N.E.C.

  • 327.

LYMPHANGIOMATOSIS & GORHAMS DISEASE ALLIANCE INC

Patient-driven solutions for complex lymphatic anomalies: GLA, GSD, KLA, CCLA • Support-Research-Education • Somatic mutations PIK3/mTor & RAS/MAPK pathways Patient advocacy group dedicated to patient driven solutions for complex lymphatic anomalies We connect patients and families to peers and networks of care, partner to advance new research, and educate the medical community to help all people navigating complex lymphatic anomalies have hope for a healthier tomorrow.

Social Rank

2896

Location

Saint Petersburg

View
Community Rebuilding
  • Nerve, Muscle, and Bone Diseases

  • 328.

OSCF ONE STEP CLOSER FOUNDATION INC

The One Step Foundation #1SCF is a non-profit, charitable organization whose main goal is to ease the lives of those who suffer from Cerebral Palsy.

Social Rank

724

Location

Houston

View
Community Rebuilding
  • Fund Raising and/or Fund Distribution

  • 329.

Hudson Foundation

Helping Understand Diseases and Supporting Ones Needs The HUDSON Advocates is an organization designed to support the Juvenile Arthritis community and support researchers, legislators, scientists, doctors, and everybody who is working to find a cure to this disease.

Social Rank

147

Location

Lincoln

View
Community Rebuilding
  • Fund Raising and/or Fund Distribution

  • 330.

Courageous Cousins

We are a 501(c)(3) non profit raising funds for cystic fibrosis research.

Social Rank

113

Location

Palm

View
Community Rebuilding
  • Fund Raising and/or Fund Distribution

  • 331.

The Children's Rare Disorders Fund

Dedicated to curing rare genetic disorders Founded in July 2022 by parents of a toddler affected by FOXG1, The CRD Fund focuses on under served communities in the rare disorder space.

Social Rank

32

Location

New York

View
Community Rebuilding
  • Alliance/Advocacy Organizations

  • 332.

Christine Fox Frauenheim Foundation

Helping families overcome obstacles to receive the best possible care and increase quality of life.

Social Rank

231

Location

Brielle

View
Community Rebuilding
  • Fund Raising and/or Fund Distribution

  • 333.

THE YAYA FOUNDATION FOR 4H LEUKODYSTOPHY

Fighting for children and families affected by 4H Leukodystrophy.

Social Rank

889

Location

MINNEAPOLIS

View