APBD RESEARCH FOUNDATION

Supporting individuals and families affected by Adult Polyglucosan Body Disease (APBD), and accelerating improved APBD diagnoses, care and treatment options.

Hemophilia Association of NY

The Hemophilia Association of New York has provided people with bleeding disorders support and aid since 1952.

ASPIRE – The Alliance To Solve Pans and Immune Related Encephalopathies Inc

ASPIRE is a 501c3 organization whose mission is to improve the quality of life for those affected by PANS, PANDAS, and immune-related encephalopathies.

• Alliance/Advocacy Organizations

• 319.

Haystack Project Inc

We are committed to the Ultra Rare Disease Community.

• Cancer

• 320.

SOTERIA Precision Medicine Foundation Inc

We are a non-profit whose mission is to support a superior approach to cancer treatment, where the patient is at the center of globally curated resources.

• Specifically Named Diseases

• 321.

3Q29 Foundation

3q29 Foundation Creating a path to treatment for chromosome 3q29 syndromes through funding research communitybuilding and increasing access to information and resources.

CureSHANK

CureSHANK's mission is to accelerate the development of treatments and cures for Phelan-McDermid Syndrome and other SHANK-related disorders.

• Fund Raising and/or Fund Distribution

• 323.

Leaders Supporting Readers

What is Dyslexia. Dyslexia is difficulty in learning how to read write and spell.

PRIMARY HEALTH CARE INC

A non-profit community health center with clinics located in Des Moines, Ames and Marshalltown.