JETT FOUNDATION INC

Empowering families. Fighting Duchenne muscular dystrophy.

Phelan McDermid Syndrome Foundation

Official site of the Phelan-McDermid Syndrome Foundation.

FABRY SUPPORT & INFORMATION GROUP

Increasing awareness for those with Fabry disease to create a brighter future, and better lives today - Education, Support, Awareness and Advocacy Founded in 1996, this group was created by Fabry patients to share information with others suffering from the disease and their families as well as educate about treatment options.

• Alliance/Advocacy Organizations

• 319.

Stargardtians Inc

Our mission is to raise awareness of Stargardt’s Disease and to create opportunities for people living with Stargardt’s to further their education and develop their own business.

• Alliance/Advocacy Organizations

• 320.

Haystack Project Inc

We are committed to the Ultra Rare Disease Community.

• Children's and Youth Services

• 321.

A Keiki Aloha Foundation Inc

Home Dedication About How you can help.

• Birth Defects, Genetic Diseases

• 322.

Iqsec2 Research and Advocacyfoundation

Welcome to IQSEC2. ORG Research and Advocacy Foundation MISSION STATEMENT Vision In the next 10 years we will dramatically improve the quality of life for those affected by IQSEC2 mutations through 1 the establishment and dissemination of standard treatment and therapy protocols to medical practitioners and therapists worldwide 2 support of research and development of new and innovative treatments for IQSEC2 related diseases and 3 uplift support all loved ones of those affected by IQSEC2 through an advocate community and its allies.

• Alliance/Advocacy Organizations

• 323.

BELOVEDS A NANIA FOUNDATION INC

BELOvEDS, A Nania Foundation Inc. is a recognized 501(c)(3) non-profit organization committed to raising awareness of, and research funding for, Vascular Ehlers-Danlos Syndrome (vEDS).

• Fund Raising and/or Fund Distribution

• 324.

PKD Outreach Foundation Ltd

Formally known as the pkDO Foundation Unite with us to ensure Generational Health and a PKDFree Future Polycystic Kidney Disease PKD is a genetic condition that affects 600000 people in the U.