• Research Institutes and/or Public Policy Analysis

• 307.

Institute for Neurodegenerative Disorders Inc

We are a scientific research institute focusing on the use of brain imaging as a tool for improving treatments for and early diagnosis of neurodegenerative disorders such as Parkinson disease, Alzheimer disease, and other neurodegenerative disorders.

Klingstein Third Generation Foundation

Klingenstein Philanthropies is comprised of three foundations focused on neuroscience, children’s health, early literacy, and the environment.

Cerebral Palsy Alliance Research Foundation

We bring science and innovation to life to change what's possible for cerebral palsy.

• Specifically Named Diseases

• 310.

Prion Alliance Inc

Non-profit organization devoted to funding scientific research towards a treatment or cure for human prion diseases.

• Birth Defects, Genetic Diseases

• 311.

Shwachman-Diamond Syndrome Alliance Inc

Shwachman-Diamond Syndrome Alliance is a nonprofit aimed at accelerating research and therapy development for this rare disease.

• Alliance/Advocacy Organizations

• 312.

Multiple Sclerosis Society of Colorado Springs

MSA provides programs, service and resources to people with MS to help them improve the quality of their life and achieve greater hope, health and independence.

• Birth Defects, Genetic Diseases

• 313.

Skraban-Deardorff Syndrome Foundation

The Skraban-Deardorff Syndrome Foundation has been formed by parents and medical professionals worldwide to foster relationships and organize resources to benefit individuals with Skraban-Deardorff Syndrome.

• Birth Defects, Genetic Diseases

• 314.

BPAN WARRIORS

Community resources, research and CONNECTION for BPAN Warrior families (WDR45, NBIA, Rare Disease, Parkinsons, Dementia, Epilepsy, Neurodegeneration, Genetics) BPAN Warriors is a growing international community of individuals who have loved ones directly affec BPAN WARRIORS CONNECT COLLABORATE CURE HOME RESEARCH PATIENT RESOURCES OUR TRIBE OUR PARTNERS DONATE RARE POV BLOG More 414 909BPAN RAREX unveils plan to radically change data collection and sharing to accelerate advances for patients in rare disease How One Rare Disease Advocate Learned to Look Across Diseases Study Makes Economic Case for Benefits of Data Sharing to Improve Diagnosis and Treatment of Rare Disease Patients Harnessing Machine Learning to Improve Diagnosis and Treatment of Rare Diseases Making Collaboration the Rule Rather than the Exception Why Data Sharing Is Critical for Accelerating Progress in Rare Disease PatientPowered Registry Boosts the Study of a Rare Disease What is Data Governance.

• Diseases of Specific Organs

• 315.

THE CHILDHOOD BRAIN TUMOR

CBTF is a volunteer-run organization driven to fund scientific research for pediatric brain tumors.