• Public Foundations

• 298.

BARTH SYNDROME FOUNDATION INC

Barth Syndrome Foundation - saving lives through education, advances in treatments, and finding a cure for Barth syndrome.

Race for Adam Foundation

Adam Recke was diagnosed in 2005 with an extremely rare, degenerative terminal disease, Type-C Niemann-Pick Syndrome.

Hereditary Disease Foundation

The official Twitter feed of the Hereditary Disease Foundation.

• Public, Society Benefit - Multipurpose & Other N.E.C.

• 301.

CheckOrphan

CheckOrphan is the leading source for news and information about rare diseases.

• Arthritis

• 302.

Arthritis Foundation, Inc.

Here for the 1 in 4 with #arthritis. | Fighting to cure the #1 cause of disability.

• Alliance/Advocacy Organizations

• 303.

International Mechanical Diagnosis and Therapy Research Foundation

This page is designed to communicate events, information and resources to encourage and promote a family centered approach to education.

• Health Support Services

• 304.

Heartworks Inc

HeartWorks builds hearts and creates positive outcomes for people born with congenital heart defects.

• Fund Raising and/or Fund Distribution

• 305.

Believe in A Cure, Inc.

Believe in a Cure, Inc. is a 501(c)(3) tax-exempt organization whose mission is to: (1) support the care and treatment of individuals diagnosed with FOXG1 Syndrome and similar disorders, as well as to raise public awareness regarding such issues; and (2) support research and development of learnings and methods to improve the qualify of life for patients with such disorders.

• Biological, Life Science Research (includes Marine Biology, Physiology, Biochemistry, Genetics, Biotechnology, etc.)

• 306.

MOONSHOTS FOR UNICORNS

Non-profit organization fueling rapid translational research which can imminently cure PGAP3-CDG Together We Can Cure Singlegene Disorders Moonshot An ambitious and innovative projectUnicorn A magical and unique being Together We Can Cure Singlegene Disorders Moonshot An ambitious and innovative project Unicorn A magical and unique being Together We Can Cure Singlegene Disorders Moonshot An ambitious and innovative projectUnicorn A magical and unique being Our Mission Cure Singlegene Disorders.