• Private Grantmaking Foundations

• 280.

Jain Foundation Inc

The Jain Foundation's mission is to identify treatments for Dysferlinopathy also known as LGMD2B/R2 or Miyoshi Myopathy ORCHESTRATING A CURE FOR DYSFERLINOPATHY The Jain Foundation is singularly focused on finding a cure for dysferlinopathy also referred to as LGMD2B LGMDR2 Miyoshi Myopathy 1 ORCHESTRATINGA CURE FORDYSFERLINOPATHY The Jain Foundation is singularly focused on finding a cure for dysferlinopathy also referred to as LGMD2B LGMDR2 Miyoshi Myopathy 1 WHAT IS DYSFERLINOPATHY.

• Specifically Named Diseases

• 281.

Prion Alliance Inc

Non-profit organization devoted to funding scientific research towards a treatment or cure for human prion diseases.

COPA Syndrome Foundation

The COPA syndrome is an inherited disorder that is caused by mutations in the COPA gene.

• Specifically Named Diseases

• 283.

SETBP1 Society

President of SETBP1 Society and Parent Advocate for SETBP1-HD SETPB1 Society's mission is to provide support to individuals with SETBP1 haploinsufficiency disorde Our Mission is to provide support to individuals with SETBP1 disorder and their families, to promote discussion and fund research, and to bring awareness and education to the public.

• Specifically Named Diseases

• 284.

3Q29 Foundation

3q29 Foundation Creating a path to treatment for chromosome 3q29 syndromes through funding research communitybuilding and increasing access to information and resources.

Rarekc Foundation

Our mission is to drive innovation in the diagnosis, care and treatment of rare diseases by connecting and inspiring our community.

Adcy5.org

Supports #raredisease ADCY5 gene variant population - patients, doctors, researchers.

• Cancer Research

• 287.

LOVE4LUCAS FOUNDATION

Help Crush DIPG in Lucas Honor Lucas Story On September 17th 2016 our little boy Lucas age 5 was diagnosed with DIPG Diffuse Intrinsic Pontine Glioma.

• Specifically Named Diseases Research

• 288.

MECP2 DUPLICATION FOUNDATION

The MECP2 Duplication Foundation is a family founded organization providing support to the MECP2 Duplication community.