APBD RESEARCH FOUNDATION

Supporting individuals and families affected by Adult Polyglucosan Body Disease (APBD), and accelerating improved APBD diagnoses, care and treatment options.

• Alliance/Advocacy Organizations

• 272.

Hht Foundation International Inc

Cure HHT is the only organization in the US advocating for research, education and a cure for Hereditary Hemorrhagic Telangiectasia, Osler-Weber-Rendu Syndrome The official Facebook page for Cure HHT, the world's leading organization working to raise awareness The mission of the HHT Foundation International is to find a cure for HHT while saving the lives and improving the well-being of individuals and families affected by HHT.

• Birth Defects, Genetic Diseases

• 273.

Hoppys Hope To End Huntingtons Disease

RAISE AWARENESS AND PROVIDE FINANCIAL SUPPORT TO ORGANIZATIONS DEDICATED TO FINDING TREATMENTS, AND ULTIMATELY, A CURE FOR HUNTINGTON'S DISEASE.

• Alliance/Advocacy Organizations

• 274.

Team Telomere

An international community for telomere biology disorders.

• Health - General & Rehabilitative N.E.C.

• 275.

Sammys Friends Foundation

Supporting parents of children with chronic illness Sammys Friends Foundation is now a 501C3 Welcome to Sammys Friends Foundation Sammy was a sweet baby boy who loved cuddles bath time and the good oldies songs.

BARROW NEUROLOGICAL FOUNDATION

Our mission is to be the catalyst of our donors’ passion for transformation by providing the resources for Barrow Neurological Institute to achieve its mission.

• Birth Defects, Genetic Diseases

• 277.

SHINE Syndrome Foundation Inc

DLG4-related Synaptopathy / SHINE Syndrome *Managed by the board of the DLG4 SHINE Foundation A page for people interested in learning more about DLG4-related Synaptopathy / SHINE Syndrome *Managed by the board of the DLG4 SHINE Foundation Our mission is to improve the quality of life for children and families impacted by DLG4 SHINE through supporting collaborative research among international medical professionals, nurturing a family community, and raising worldwide awareness.

• Birth Defects, Genetic Diseases

• 278.

The PolG Foundation

The mission of The POLG Foundation is to support and accelerate research to find effective treatments and a cure for PolG mitochondrial disorders.

CASTING 4 A CURE INC

Casting 4 A Cure is a 501 c3 non-profit organization dedicated to funding critical research and family support programs for Rett Syndrome.