• Public Foundations

• 28.

BARTH SYNDROME FOUNDATION INC

Barth Syndrome Foundation - saving lives through education, advances in treatments, and finding a cure for Barth syndrome.

Canavan Foundation, Inc.

CANAVAN FOUNDATION Preventing Childhood Genetic Disease Through Education We have a blog.

Epilepsy Foundation of Greater Chicago

This is the official Facebook page of the Epilepsy Foundation of Greater Chicago.

• Patient Services�Entertainment, Recreation

• 31.

Spark Hope Inc

FA Adventure Day 2020 is online this year with 2groups your choice of 818 or 819.

• Professional Societies & Associations

• 32.

Sturge-Weber Foundation

Embracing our uniqueness. We may be rare, but we're also one in a million.

• Fund Raising and/or Fund Distribution

• 33.

Ejs Promise

EJ’S PROMISE, Inc is a nonprofit, fundraising organization created in memorial of Jackie Spears, suffered from Huntington's Disease, and Emery Elizabeth Simon, diagnosed with Trisomy 18 at birth.

• Nonmonetary Support N.E.C.*

• 34.

Global Neuro Ycare Inc

The mission of Global Neuro YCare is to educate through the creation and translation of materials and programs for children, youth and families; advocate with national and international organizations to guide the creation of regional, cultural and country specific programming; and support research addressing the needs and experiences of young carers.

• Birth Defects, Genetic Diseases

• 35.

STXBP1 FOUNDATION

Non-profit dedicated to ending STXBP1-related disorders, rare neurodevelopmental and epileptic encephalopathies, and spreading awareness of this rare disease.

• Specifically Named Diseases

• 36.

CTNNB1 Connect and Cure Inc

Connecting families, raising awareness, finding treatments and a cure for CTNNB1 Syndrome 🧬💛💙 https://t.