ALSTROM SYNDROME INTERNATIONAL

To provide support, information, & coordination worldwide in order to treat and work to cure Alstrom.

DUP 15Q ALLIANCE

Through our work to raise awareness and promote research into chromosome 15q duplications, we seek to find targeted treatments so that affected individuals can live full and productive lives.

• Diseases, Disorders, Medical Disciplines N.E.C.

• 264.

LYMPHANGIOMATOSIS & GORHAMS DISEASE ALLIANCE INC

Patient-driven solutions for complex lymphatic anomalies: GLA, GSD, KLA, CCLA • Support-Research-Education • Somatic mutations PIK3/mTor & RAS/MAPK pathways Patient advocacy group dedicated to patient driven solutions for complex lymphatic anomalies We connect patients and families to peers and networks of care, partner to advance new research, and educate the medical community to help all people navigating complex lymphatic anomalies have hope for a healthier tomorrow.

• Other Philanthropy, Voluntarism, and Grantmaking Foundations N.E.C.

• 265.

Liam M Kinne Foundation

Serving proudly as an avenue of mental and physical health and wellness aimed at empowering individuals, families, and communities to move together as one.

• Health Support Services

• 266.

Mfdm Foundation

The MFDM Foundation is a 501(c)(3) public charity that supports conferences related to MFDM The MFDM Foundation The MFDM Foundation The MFDM Foundation About The MFDM Foundation Our History In2015Brittthe motherof achild diagnosed with MandibulofacialDysostosiswith MicrocephalyMFDM felt isolated and longedfor community andconnectionwith otherfamilies who were affected by the samerarecondition.

• Alliance/Advocacy Organizations

• 267.

Lissencephaly Foundation Inc

Empowering Families & Educating Communities by promoting a day of awareness, hosting family gatherings, providing family support, & educational material.

• Medical Specialty Research

• 268.

Curemapk8Ip3 Foundation

Family support network for patients and their families affected by a gene mutation in MAPK8IP3 Page for individuals and families with gene variant MAPK8IP3 Improve the lives of patients and families affected by a MAPK8IP3 gene mutation by performing the following activities: raising community awareness of MAPK8IP3-Related Neurodevelopmental Disorder; facilitating research of MAPK8IP3-Related Neurodevelopmental and related Disorders; collecting and disseminating information and resources relating to MAPK8IP3-Related Neurodevelopmental and related Disorders; supporting those affected by MAPK8IP3-Related Neurodevelopmental and related Disorders; and any other charitable educational or scientific activities that are in furtherance of the Corporation's purposes.

Freddie Ford Family Foundation

Spreading autism awareness and encouraging acceptance.

• Patient Services�Entertainment, Recreation

• 270.

INTERNATIONAL CHILDRENS ADVISORY NETWORK

The International Children's Advisory Network (iCAN) Home iCAN Calendar About Partners iCAN Summit Ask the Experts iCAN Programs iCAN Resources More EmpoweringPediatric PatientsWorldwide Sharing the voices of Every Kid Everywhere to foster a greater global understanding of the needs of pediatric patients.