• Fund Raising and/or Fund Distribution

• 217.

CHILDRENS INTERSTITIAL LUNG DISEASE FOUNDATION INC

A non-profit organization whose mission is to accelerate research to cure all forms of Children’s Interstitial and Diffuse Lung Disease.

Neurofibromatosis Midwest

Neurofibromatosis (NF) is a genetic disorder of the nervous system which causes tumors to form on th NF Midwest is committed to improving the lives of children, adults, and families impacted by neurofibromatosis in our region which includes Illinois, Indiana, Iowa, Kentucky, Wisconsin, and the eastern half of Missouri.

• Specifically Named Diseases

• 219.

SETBP1 Society

President of SETBP1 Society and Parent Advocate for SETBP1-HD SETPB1 Society's mission is to provide support to individuals with SETBP1 haploinsufficiency disorde Our Mission is to provide support to individuals with SETBP1 disorder and their families, to promote discussion and fund research, and to bring awareness and education to the public.

• Birth Defects, Genetic Diseases Research

• 220.

Channeling Hope Foundation

Channeling Hope Foundation A community of researchers and families driven to advance care and develop treatments for those affected by NALCNrelated disorders.

Parkinson's Resource Organization, Inc.

We are a 501(c)(3) non-profit charitable organization that provides group and individual support to those making the journey through Parkinson’s.

• Fund Raising and/or Fund Distribution

• 222.

Bubbas Buddies

Finding a cure for Degenerative Myelopathy and helping those families who are impacted by the disease.

• Nerve, Muscle, and Bone Diseases

• 223.

Smashsmard, Inc.

SMARD1 is an inherited condition that causes muscle weakness and respiratory failure typically beginning in infancy.

• Fund Raising and/or Fund Distribution

• 224.

Ava Grace Foundation

For UPD14 Home Ava Gracex27s Story Donate Families Caregivers Medical Professionals Upcoming Events More The Ava Grace Foundation Supporting Families Advancing Research of UPD14Uniparental Disomy of the 14th Chromosome Families Caregivers Information about UPD14 common signs and symptoms getting diagnosed and treatments.

• Specifically Named Diseases Research

• 225.

Dion Foundation for Children with Rare Diseases Inc

Support research. Find a cure. Help children and families fight rare diseases.