• Epilepsy

• 208.

Epilepsy Study Consortium Inc

Home Our Mission The Epilepsy Study Consortium TESC is a group of scientific investigators from academic medical research centers who are dedicated to accelerating the development of new therapies in epilepsy to improve patient care.

Pheo Para Patient Initiative Incorporated

Our Team Speakers Bureau Pheochromocytoma Paraganglioma Peer Support Newly Diagnosed Care Kits Clinical Care Guidelines Center of Excellence Program PatientFocused Research International Symposium on Pheo Peer Support 1 on 1 and monthly peer support meetings Center of Excellence Program Find an Experienced Medical Team learn more Pheo Para Educational Video Library help others Pheo Para Alliance NEWS EVENTS keeping you up to date 2025 Rare Disease Day Posted on 25th February 2025 Nominate a Phriend for a 2025 Volunteer Award.

LEGACY OF ANGELS

The Mission of The Legacy of Angels Foundation, a 501 (c) (3) private giving family foundation established in 2008, is to improve the lives of children by working to promote the expansion of newborn screening, and to further education, awareness and research of Krabbe disease and Cystic Fibrosis to provide a better treatment and a cure.

• Specifically Named Diseases

• 211.

CADASIL Association

cureCADASIL is a non-profit organization committed to curing #CADASIL and improving the quality of life for those affected by this genetic disease.

• Brain Disorders

• 212.

Global Coalition for Adaptive Research Inc

GCAR is a 501(c)(3) nonprofit organization accelerating the discovery and development of treatments for patients with rare and deadly diseases Global Coalition for Adaptive Research (GCAR) is a nonprofit organization committed to accelerating the discovery and development of treatments for patients with rare and deadly diseases Our mission is to speed the discovery and development of treatments for patients with rare and deadly diseases by serving as the sponsor of innovative trials.

• Services to Promote the Independence of Specific Populations

• 213.

Project Strong Inc

Strong missioN Our mission at Project Strong is to empower children and young adults living with neuromuscular diseases discover and express their unique strengths by providing educational programs activities events that meet their needs.

• Public Foundations

• 214.

The Silverstein Foundation for Gba Research

The Silverstein Foundation: Accelerating research in Parkinson's with GBA Accelerating research in Parkinsonswith GBA The Silverstein Foundation for Parkinsons with GBA supports cutting edge research with the goal of discovering new therapies for the treatment of Parkinsons Disease in glucocerebrosidase GBA mutation carriers.

• Specifically Named Diseases

• 215.

The Kennedy Ladd Foundation, Inc.

The Kennedy Ladd Foundation is committed to ending the suffering caused by MPS1, a progressive and life-threatening disease.

COALITION FOR NATIONAL TRAUMA RESEARCH

Research Saves Lives Our mission is to save lives and reduce disability by focusing on these key drivers of progress CNTR News Opportunities Join our mailing list to receive CNTRs monthly newsletter highlighting funding opportunities new investigator resources study outcomes upcoming events and member involvement.