• Public Health Programs

• 199.

United Pompe Foundation

SUPPORT RESEARCH FOR POMPE DISEASE AND HELP PATIENTS DEALING WITH POMPE DISEASE United Pompe Foundation The United Pompe Foundation was formed to assist patients andor their families with medical costs and other expenses that these patents and families face and may not be able to cover or fully cover through their insurance.

• Alliance/Advocacy Organizations

• 200.

Team Telomere

An international community for telomere biology disorders.

DUPUYTREN RESEARCH GROUP

Dupuytren Research Group: A Future Without Dupuytren Disease Mission Statement: A future without Dupuytren disease.

MYOSITIS SUPPORT AND UNDERSTANDING ASSOCIATION

MSU, patient-led, all-volunteer nonprofit empowering the #Myositis community.

DYSAUTONOMIA PROJECT INC

The Project creates awareness and raises funds for dysautonomia education in the medical community, among healthcare providers and the general population.

• Specifically Named Diseases Research

• 204.

Cure Szt2

Cure SZT2 is a non-profit organization dedicated to families affected by the genetic mutation SZT2.

• Birth Defects, Genetic Diseases Research

• 205.

Valerias Foundation for Kcnt1 Research Inc

#rettevaleria #savevaleria #helpvaleria #supportvaleria #valeriasKCNT1 #raredisease #epilepsy #geneticdisorder #meinestimmefuereinleben #teamvaleria The Valeria Foundation is committed to achieving that: [+] to promote knowledge about the existence and cure of orphan diseases.

• Birth Defects, Genetic Diseases

• 206.

Cure SPG4 Foundation

Home About SPG4 About Us Research Resources Contact More.

MUSCULAR DYSTROPHY FAMILY

The Muscular Dystrophy Family Foundation uses the power of giving to increase the quality of life and independence of people with muscular dystrophy—and empower their families—through advocacy, education, and financial assistance Living with a neuromuscular disease means facing new challenges every day.