• Private Grantmaking Foundations

• 190.

Jain Foundation Inc

The Jain Foundation's mission is to identify treatments for Dysferlinopathy also known as LGMD2B/R2 or Miyoshi Myopathy ORCHESTRATING A CURE FOR DYSFERLINOPATHY The Jain Foundation is singularly focused on finding a cure for dysferlinopathy also referred to as LGMD2B LGMDR2 Miyoshi Myopathy 1 ORCHESTRATINGA CURE FORDYSFERLINOPATHY The Jain Foundation is singularly focused on finding a cure for dysferlinopathy also referred to as LGMD2B LGMDR2 Miyoshi Myopathy 1 WHAT IS DYSFERLINOPATHY.

JETT FOUNDATION INC

Empowering families. Fighting Duchenne muscular dystrophy.

• Brain Disorders

• 192.

VANISHING WHITE MATTER FOUNDATION

Our mission is to raise funds to support VWM Leukodystrophy specific research to help treat and cure this rare disease.

Cloves Syndrome Community

Support, Research & Education to improve the quality of life for ppl with CLOVES.

• Human Service Organizations

• 194.

ChadTough Defeat DIPG Foundation

In the fight for a DIPG/DMG cure, we help patients and families by funding game-changing research and providing navigation throughout their journey.

• Birth Defects, Genetic Diseases Research

• 195.

Ataxia Telangiectasia Children's Project, Inc.

The A-TCP organizes & supports innovative research to optimize disease management strategies, develop new treatments and find a cure for ataxia-telangiectasia.

• Cancer Research

• 196.

Williams Warriors Inc

William's Warriors Inc. is a nonprofit created in memory of William Schultz.

Dlg4 Research Fund

DLG4-related Synaptopathy / SHINE Syndrome *Managed by the board of the DLG4 SHINE Foundation A page for people interested in learning more about DLG4-related Synaptopathy / SHINE Syndrome *Managed by the board of the DLG4 SHINE Foundation Mission To find specific treatment options and a cure for DLG4 patients by building a collaborative network of patients, families, clinicians and scientists that will work together to raise awareness and accelerate the understanding, diagnosis and treatment of DLG4 related synaptopathy.

• Nonmonetary Support N.E.C.*

• 198.

SPOONBILL FOUNDATION

Finding a solution for PKAN Spoonbill Foundation and our sister organization Stichting Lepelaarwere founded with the goal to discover develop and deliver therapeutics for PKAN and all NBIA disorders in partnership with the NBIA community as swiftly as possible and at the lowest cost.