• Alliance/Advocacy Organizations

• 190.

Hht Foundation International Inc

Cure HHT is the only organization in the US advocating for research, education and a cure for Hereditary Hemorrhagic Telangiectasia, Osler-Weber-Rendu Syndrome The official Facebook page for Cure HHT, the world's leading organization working to raise awareness The mission of the HHT Foundation International is to find a cure for HHT while saving the lives and improving the well-being of individuals and families affected by HHT.

PAULA TAKACS FOUNDATION FOR SARCOMA RESEARCH

Raising funds for pediatric & adult #sarcoma research @levinecancer & @levinechildrens in CLT, NC Funding Local Research.

• International Development, Relief Services

• 192.

Gift From the Heart Foundation Inc

Dar Serca / Gift from the Heart Foundation provides administrative and medical support for children with special medical needs.

Children R Our Future of Volusia County, Inc.

https://www. childrenrourfuture. org ❤️❤️❤️EMAIL❤️❤️❤️ mamac@childrenrourfuture.

• Alliance/Advocacy Organizations

• 194.

Munchausen Support

Resources for Families and Frontline Professionals Dealing with Munchausen by Proxy Munchausen by Proxy is a serious and widelymisunderstood form of child abuse.

Rogers Memorial Hospital Foundation, Inc.

Rogers Behavioral Health Foundation secures funding and provides financial support to advance treatment, education, advocacy and research on behalf of people with mental health or addiction challenges, their families and the communities we serve.

• Alliance/Advocacy Organizations

• 196.

Loeys-Dietz Syndrome Foundation

The LDSF is a 501(c)3 non-profit organization organization dedicated to:--encouraging education about Loeys-Dietz syndrome and related connective tissue disorders to medical professionals and lay communities in order to aid in identification, diagnosis and treatment of Loeys-Dietz syndrome--fostering research about Loeys-Dietz syndrome--providing a support network, for individuals, parents and families affected by Loeys-Dietz syndrome This March were celebrating 20 years since LoeysDietz Syndrome was first identified.

• Specifically Named Diseases

• 197.

Project CASK

An innovative rare disease non-profit driving breakthroughs in treatments and a cure for CASK gene disorders.

• Patient Services�Entertainment, Recreation

• 198.

SITOSTEROLEMIA FOUNDATION

Sitosterolemia Foundation Home About us About Sitosterolemia Resources Events FAQ Contact Us More Supporting families and individuals with Sitosterolemia Sitosterolema Foundation is a nonprofit organization dedicated to supporting families individuals and professionals dealing with Sitosterolemia a rare sterol disease.