GILLETTE CHILDRENS SPECIALTY HEALTH CARE

We are a global beacon of care for patients with brain, bone and movement conditions.

• Private Independent Foundations

• 182.

Hannah Storm Foundation

We fund surgeries for children suffering from Vascular Birthmarks.

• Nerve, Muscle, and Bone Diseases

• 183.

Cohen Syndrome Association

Welcome to the Official fan page of the Cohen Syndrome Association ®.

ALD Alliance

Fighting to pass Aidan's Law for National Newborn Screening for all RUSP conditions.

• Epilepsy

• 185.

Taylen Lauren Horton Foundation Inc

he Taylen Lauren Horton Foundation was created to not only bring awareness to Dravet Syndrome but to serve as a resource for providing information, motivation and inspiration to current families of children with Dravet Syndrome or those on the spectrum.

• Specifically Named Diseases

• 186.

CURE ADSSL1

501(c)(3) non-profit patient advocacy group with the mission to find treatment for ADSSL1 myopathy Mission of the CURE ADSSL1 organization is to invest in research and develop treatment options for patients with rare neuromuscular disease caused by mutation in ADSSL1 gene.

• Birth Defects, Genetic Diseases Research

• 187.

International FOXP1 Foundation

Our mission is to build a global community that empowers and supports families and individuals with FOXP1 syndrome by sharing knowledge, inspiring hope, supporting research, and raising awareness.

• Philanthropy/Charity/ Voluntarism Promotion (General)

• 188.

HOPEFUL HALOS FOUNDATION

About Share Event Info Register Contact More.

• Birth Defects, Genetic Diseases

• 189.

GRIN2B FOUNDATION

Our goal is to offer support and share research to the small, but growing community of children diagnosed with alterations on their GRIN2B gene.