• Cancer

• 181.

FRIENDS OF ESSENTIAL THROMBOCYTHEMIA INC

To raise funds for the rare blood cancer/bone marrow disorder known as Essential Thrombocythemia (ET.

• Fund Raising and/or Fund Distribution

• 182.

Wide Open Charitable Foundation

The Wide Open Charitable Foundation's mission is fundraising for the research of Neuroblastoma & other Childhood Cancers Fundraising for the research of Neuroblastoma and other Childhood Cancers while offering support and hope for the children and families battling these diseases.

VHL ALLIANCE INC

We are a non-profit support organization for patients and families affected by von Hippel-Lindau disease (VHL).

• Fund Raising and/or Fund Distribution

• 184.

Walking To End Duchenne Inc

Walking to End Duchenne is a nonprofit organization created by a mother joined by friends and family willing to walk in all possible directions to find the cure for Duchenne muscular dystrophy.

• Specifically Named Diseases

• 185.

CADASIL Association

cureCADASIL is a non-profit organization committed to curing #CADASIL and improving the quality of life for those affected by this genetic disease.

• Brain Disorders

• 186.

NOAHS HOPE HOPE 4 BRIDGET FOUNDATION

The mission of the Noah's Hope – Hope4Bridget Foundation is to raise funds in support of scientific research, and inform the community about Batten Disease.

• Private Grantmaking Foundations

• 187.

Wallace Beeson Foundation Inc

A 501(c) founded in 2017 to raise money for research in rare Neurogastrointestinal & Motility Disease Home About Research Our Team More JOIN OUR FIGHT TOMAKE RARE KNOWN Funding Research for Rare Neurogastrointestinal Motility disorders YOUR DONATION FUNDS A DESPERATE NEED IN RESEARCH HOW WE STARTED From being a healthy 15yearold competitive swimmer to having to fight for herlife almost overnight Wallacesaw first hand the effect a rare condition has on someone.

CureSHANK

CureSHANK's mission is to accelerate the development of treatments and cures for Phelan-McDermid Syndrome and other SHANK-related disorders.

• Birth Defects, Genetic Diseases Research

• 189.

Channeling Hope Foundation

Channeling Hope Foundation A community of researchers and families driven to advance care and develop treatments for those affected by NALCNrelated disorders.