• Alliance/Advocacy Organizations

• 19.

ARPKD/CHF Alliance

The ARPKD/CHF Alliance is only organization in the world solely committed to both Autosomal Recessive Polycystic Kidney Disease and Congenital Hepatic Fibrosis.

AMERICAN LIVER FOUNDATION

Our mission is to facilitate, advocate & promote education, support & research for the prevention, treatment & cure of liver disease.

ALD Alliance

Fighting to pass Aidan's Law for National Newborn Screening for all RUSP conditions.

• Private Grantmaking Foundations

• 22.

Brian J Kelley Foundation for Hope Inc

Through Brian’s Hope, a 501(c)(3) charitable foundation, we look forward to when no child experiences the devastation of adrenoleukodystrophy (ALD) Through Brian’s Hope, a 501(c)(3) charitable foundation, we look forward to a day when no child will experience the devastation of adrenoleukodystrophy (ALD).

• Birth Defects, Genetic Diseases

• 23.

International Rett Syndrome Association, Inc.

We are transforming lives every day in our fight to treat and cure Rett syndrome and better the lives of families living with this devastating disorder.

WIEDEMANN-STEINER SYNDROME FOUNDATION

The Wiedemann-Steiner Syndrome Foundation provides education, fosters community, and stimulates research to improve the lives of everyone impacted by #WSS.

• Fund Raising and/or Fund Distribution

• 25.

ASXL RARE RESEARCH ENDOWMENT FOUNDATION

Supporting research and education to improve the quality of life for those living with ASXL-related disorders #BohringOpitz #ShashiPena and #BainbridgeRopers We support research and education to improve the lives of families living with ASXL syndromes.

International Rett Syndrome Foundation

We are transforming lives every day in our fight to treat and cure Rett syndrome and better the lives of families living with this devastating disorder.

• Fund Raising and/or Fund Distribution

• 27.

BENEFIT OTHERS FOUNDATION

Helping to overcome hardships and providing opportunities for children and their families Who We Are Benefit Others Foundation is a nonprofit 501c3 organization committed to enriching the lives of others.