• Epilepsy

• 19.

Where Theres A Will Theres A Cure

We are going to cure X-Linked Myotubular Myopathy.

• Birth Defects, Genetic Diseases Research

• 20.

Fam177a1 Research Fund

Founder and President, FAM177A1 Research Fund The mission of the FAM177A1 Research Fund is to improve the lives of those affected by FAM177A1 Associated Disorder through research and development of transformative therapies.

• Birth Defects, Genetic Diseases

• 21.

Springer Family Foundation Inc

Extra To Love aims to empower the Trisomy 13 and 18 communities through connection, financial support and education.

For Ian Foundation

Dedicated to funding a cure for SDH deficient and childhood cancers FOR IAN FOUNDATION Dedicated to finding treatments for rare childhood cancersGREEN FOR IAN 2025 February 13 2025Learn MoreFranko Rahimi Recounts Experience of Losing His Child40000 grant awarded to Dr.

• Other Philanthropy, Voluntarism, and Grantmaking Foundations N.E.C.

• 23.

Olivia's Light Inc

Olivia's Light supports children living with a rare disease.

• Specifically Named Diseases

• 24.

MLD FOUNDATION

SUPPORTING FAMILIES and INFLUENCING RESEARCH AROUND THE WORLD for METACHROMATIC LEUKODYSTOPHY .

• Patient Services�Entertainment, Recreation

• 25.

BELIEVING FOR BRYLEIGH FOUNDATION INC

On April 2, 2013 our little girl Bryleigh was diagnosed with MLD.

• Fund Raising and/or Fund Distribution

• 26.

Family Strong Foundation Inc

FAMILY STRONG FOUNDATON 550000Raised for Researchsince 2014 Raising awareness while supporting the reasearch for a CURE for ALS.

• Fund Raising and/or Fund Distribution

• 27.

THE YAYA FOUNDATION FOR 4H LEUKODYSTOPHY

Fighting for children and families affected by 4H Leukodystrophy.