• Specifically Named Diseases Research

• 19.

PARENTS OF INFANTS AND CHILDREN WITH KERNICTERUS INC

Parents of Infants and Children with Kernicterus (PICK) is a parent-run 501 (c)(3) non-profit organization dedicated to research, education, prevention and outreach for children with kernicterus and their families.

• Birth Defects, Genetic Diseases

• 20.

Faith for Hayden Inc

Faith for Hayden is a non-profit organization created to raise money for Schaaf-Yang Syndrome research.

Living With Xxy Inc

Storytelling the lives of men and boys living with Klinefelter Syndrome/XXY, while saving baby boys from termination.

• Birth Defects, Genetic Diseases

• 22.

Louies Huwe

Looking for information on HUWE1 gene variants.

• Birth Defects, Genetic Diseases

• 23.

Tatton Brown Rahman Syndrome Community Inc

The Tatton Brown Rahman Syndrome Community supports research and educates individuals with TBRS and their families, friends, and service providers.

• Diseases, Disorders, Medical Disciplines N.E.C.

• 24.

Rare Genes Movement

Our vision is to see every child have access to proper medical, therapeutic, and educational resourc Our purpose is to raise awareness and funds to help families of children with rare genetic disorder.

• Down's Syndrome

• 25.

Northwest Kansas Down Syndrome Society

Northwest Kansas Down Syndrome Society The difference between ordinary and extraordinary is just that little extra Photo Credit Christine Roth Photography What is Down Syndrome.

• Animal Protection and Welfare (includes Humane Societies and SPCAs)

• 26.

Kagavu Foundation

Provide aid to a school and medical center in Uganda about us.

• Professional Societies & Associations

• 27.

NOONAN SYNDROME FOUNDATION

Noonan Syndrome (NS) is the most common syndrome you've never heard of.