Cure Tay-Sachs Foundation

THE CURE TAY-SACHS FOUNDATION HAS BEEN CREATED TO FUND THE RESEARCH INITIATIVES THAT SHOW PROMISE TO TREAT AND ULTIMATELY CURE TAY-SACHS DISEASE (TSD).

• Fund Raising and/or Fund Distribution

• 20.

Familial Dysautonomia (FD) Foundation, Inc.

FD Foundation is the leader in FD treatment and research.

• Fund Raising and/or Fund Distribution

• 21.

Arid1B Research Foundation

Accelerating the development of disease-modifying treatments for #ARID1B-RD (haploinsufficiency) - the most frequently mutated gene in de novo NDDs (ASD, ID).

Malan Syndrome Foundation Inc

Malan syndrome is a rare genetic disorder that is the result of a change in the NFIX gene.

• Birth Defects, Genetic Diseases Research

• 23.

Alstrom Angels Corp

www. alstromangels. org Dedicated to raising funds for Alstrom Syndrome genetic and medical research, increasing awareness of the rare disease among the general public and medical communities, and improving family support for those affected by the Syndrome.

• Specifically Named Diseases

• 24.

Smith-Kingsmore Syndrome Foundation

Smith-Kingsmore Syndrome is a rare genetic disease.

• Fund Raising and/or Fund Distribution

• 25.

A Noble Journey Inc

Our mission is to raise money for the awareness of treatment of and research for a cure of MPS.

• Patient Services�Entertainment, Recreation

• 26.

Idefine Inc

IDefine is committed to identifying life-changing treatments & cures and building community for those with Kleefstra Syndrome and intellectual disabilities.

BEYOND THE DIAGNOSIS

Beyond the Diagnosis unites art and science to bridge the knowledge gap in healthcare, promote inclusivity, and raise awareness for children living with life-altering diseases.