• Epilepsy Research

• 19.

Bridge the Gap

SYNGAP1 Foundation is a legacy page dedicated to preserving the work and mission of our 100% charitable nonprofit in the USA, focused on #SYNGAP1 To serve, educate and fund research for families coping with the effects of SYNGAP mutations.

Kcnq2 Cure Alliance Inc

Our promise is to educate and to advance research leading to treatments or a cure for patients living with the genetic disorder KCNQ2 Raising awareness, educating, and advancing research for KCNQ2 Developmental and Epileptic Encephalopathy.

• Fund Raising and/or Fund Distribution

• 21.

COALITION TO CURE CHD2 INC

Fighting for our kiddos, and others, with CHD2-related neurodevelopmental disorders.

• Fund Raising and/or Fund Distribution

• 22.

Arid1B Research Foundation

Accelerating the development of disease-modifying treatments for #ARID1B-RD (haploinsufficiency) - the most frequently mutated gene in de novo NDDs (ASD, ID).

• Epilepsy

• 23.

Kcna2 Epilepsy Inc

Join the KCNA2 Epilepsy Global Support Community on our quest for more information, research, treatments and a cure.

• Cancer

• 24.

Fbxo31 Foundation

The FBXO31 Foundation was formed to eradicate FBXO31-related cerebral palsy by raising awareness and funds to accelerate research for a cure.

• Fund Raising and/or Fund Distribution

• 25.

Believe in A Cure, Inc.

Believe in a Cure, Inc. is a 501(c)(3) tax-exempt organization whose mission is to: (1) support the care and treatment of individuals diagnosed with FOXG1 Syndrome and similar disorders, as well as to raise public awareness regarding such issues; and (2) support research and development of learnings and methods to improve the qualify of life for patients with such disorders.

• Fund Raising and/or Fund Distribution

• 26.

The Children's Rare Disorders Fund

Dedicated to curing rare genetic disorders Founded in July 2022 by parents of a toddler affected by FOXG1, The CRD Fund focuses on under served communities in the rare disorder space.

• Epilepsy Research

• 27.

Shay Emma Hammer Research Foundation

We’re working to document the first 1000 cases of SCN8A gene variants and connect families Advancing epilepsy awareness.