• Research Institutes and/or Public Policy Analysis

• 19.

Forgotten Diseases Research Foundation

THE FORGOTTEN DISEASES RESEARCH FOUNDATION IS A NONPROFIT DEDICATED TO VERY RARE DISORDERS.

DDC CLINIC FOR SPECIAL NEEDS CHILDREN

DDC Clinic is a non-profit primary care, education, and research facility.

• Fund Raising and/or Fund Distribution

• 21.

Eleanor Kaplan Foundation Inc

To raise funds and awareness to develop cures for Ultra Rare Neurodegenerative Diseases.

• Birth Defects, Genetic Diseases Research

• 22.

Spata Foundation Inc

Our mission is to advocate, educate, and raise funds for research towards SPATA5 & SPATA5L1 Disorders The SPATA Foundation's Mission is to advocate, educate, and drive research towards SPATA5 and SPATA5L1 Related Disorders.

LIV4THECURE

Liv4TheCure’s mission is to promote awareness, help families and fund research for Wolf Hirschhorn Syndrome.

WIEDEMANN-STEINER SYNDROME FOUNDATION

The Wiedemann-Steiner Syndrome Foundation provides education, fosters community, and stimulates research to improve the lives of everyone impacted by #WSS.

• Fund Raising and/or Fund Distribution

• 25.

Childrens Rare Disease Organization Inc

Many children are living with a rare disease.

• Alliance/Advocacy Organizations

• 26.

Rare Disease Company Coalition Inc

We are a coalition of life science companies committed to discovering, developing & delivering rare disease treatments for the patients we serve.

• Fund Raising and/or Fund Distribution

• 27.

CURE RARE DISEASE INC

Nonprofit biotech leading a global collaboration to develop life-saving medicines for rare diseases Revolutionizing UltraRare Disease Treatment through Innovation and Collaboration Revolutionizing UltraRare Disease Treatment through Innovation and Collaboration What Wex27re Working Towards We envision a future where every patient has access to treatment.