• Alliance/Advocacy Organizations

• 19.

Hht Foundation International Inc

Cure HHT is the only organization in the US advocating for research, education and a cure for Hereditary Hemorrhagic Telangiectasia, Osler-Weber-Rendu Syndrome The official Facebook page for Cure HHT, the world's leading organization working to raise awareness The mission of the HHT Foundation International is to find a cure for HHT while saving the lives and improving the well-being of individuals and families affected by HHT.

• Other Philanthropy, Voluntarism, and Grantmaking Foundations N.E.C.

• 20.

INTERNATIONAL CHILDRENS ANOPHTHALMIA NETWORK INC

ICAN a voluntary not for profit organization, is a group of families and professionals dedicated to lending support to individuals who want to learn more about microphthalmia and anopthalmia and associated genetic counseling.

DDC CLINIC FOR SPECIAL NEEDS CHILDREN

DDC Clinic is a non-profit primary care, education, and research facility.

• Research Institutes and/or Public Policy Analysis

• 22.

Riaan Research Initiative Inc

501(c)(3) non-profit organization hunting for a cure for rare and life-limiting genetic diseases that hurt children, starting with Cockayne syndrome.

• Fund Raising and/or Fund Distribution

• 23.

COALITION TO CURE CHD2 INC

Fighting for our kiddos, and others, with CHD2-related neurodevelopmental disorders.

• Diseases, Disorders, Medical Disciplines N.E.C.

• 24.

Rare Genes Movement

Our vision is to see every child have access to proper medical, therapeutic, and educational resourc Our purpose is to raise awareness and funds to help families of children with rare genetic disorder.

PACIFIC NORTHWEST RESEARCH INSTITUTE

PNRI unravels the powerful mysteries of genetics to drive future medical breakthroughs.

• Fund Raising and/or Fund Distribution

• 26.

Tough Genes Inc

Currently, there is no treatment for IRF2BPL-Related Disorder.

• Specifically Named Diseases Research

• 27.

THE FOCUS FOUNDATION INC

OUR FOCUS:Helping children who have* X & Y Variations* Dyslexia * DyspraxiaEarly Identification + Tar Early Awareness Detection Treatment for X Y Chromosomal Variation Disorders X Y Chromosomal Disorders 47 XXY 47 XYY 47 XXX Learn more about them.