Cornelia de Lange Syndrome Foundation, Inc.

Cornelia de Lange Syndrome, promoting research & providing support to individuals with CdLS & their families 860.

Rare and Undiagnosed Network Inc

RUN for those affected with rare/undiagnosed conditions: Raise awareness.

• Birth Defects, Genetic Diseases Research

• 21.

Greenwood Genetic Center Inc

Clinical geneticists, laboratory diagnosticians, researchers, and educators with a passion for patient care.

• Education N.E.C.

• 22.

Developmental Disabilties Nurses Association Inc

The non-profit assoc. for nurses who specialize in the care of persons with intellectual and developmental disabilities.

• Fund Raising and/or Fund Distribution

• 23.

Rare Village Foundation

TO FIGHT FOR CURES FOR RARE DISEASES AND EMPOWER INDIVIDUALS WITH RARE DISEASES TO LIVE THEIR BEST LIVES THROUGH LOCAL COMMUNITY EDUCATION, INSPIRING ADVOCACY, AND TIMELY CONNECTION TO CRITICAL RESEARCH THAT LEADS TO CURES We Empower Families to Create Cures for Rare Disease.

• Fund Raising and/or Fund Distribution

• 24.

Tbc1D24 Foundation

Tbc1d24 foundation is a research organization and connecting site for caregivers, families, and those diagnosed with Tbc1d24 mutations.

• Specifically Named Diseases

• 25.

YBRP Inc

YBRP is a non-profit organization whose mission is to positively impact the lives of individuals with HNRNPH2 genetic variations.

• Public Foundations

• 26.

Greenwood Genetic Center Foundation

Clinical geneticists, laboratory diagnosticians, researchers, and educators with a passion for patient care.

• Fund Raising and/or Fund Distribution

• 27.

The Children's Rare Disorders Fund

Dedicated to curing rare genetic disorders Founded in July 2022 by parents of a toddler affected by FOXG1, The CRD Fund focuses on under served communities in the rare disorder space.