• Specifically Named Diseases

• 172.

Yash Gandhi Foundation for Finding A Cure for I-Cell

The mission of the Yash Gandhi Foundation is to raise awareness, build patient advocacy and sustain research efforts into finding a cure for Mucolipidosis II (I-Cell Disease).

• Research Institutes and/or Public Policy Analysis

• 173.

International Pnh Interest Group

Cookie settings Save the Date. Paris France ESHEBMTEHAIPIG 3rd Translational Research Conference Bone Marrow Failure and Leukemia Predisposition Syndromes IPIG Friday Satellite Symposium at ASH Annual Meeting Exposition Our mission The mission of the International PNH Interest Group is to advance optimal treatment and care of people living with paroxysmal nocturnal hemoglobinuria PNH and related conditions to provide instruction information and training to health care providers and to help further research on new and effective treatment options and improved patient access to approved therapies and treatments.

• Alliance/Advocacy Organizations

• 174.

Allo Hope Foundation

Our mission is to prevent any harm, stillbirth or infant death caused by #Alloimmunization and Hemolytic Disease of the Fetus and Newborn (#HDFN) Our mission is to prevent harm, stillbirth and infant death caused by alloimmunization and HDFN.

• Professional Societies & Associations

• 175.

Healthspan Action Coalition Inc

The mission is to advance biomedical research related to aging, longevity and healthspan.

• Specifically Named Diseases

• 176.

Niemann-Pick Childrens Fund

Niemann-Pick Children's Fund, Inc. was organized in December of 2008 in order to raise awareness of Niemann-Pick Disease Type C and its affect on families in America; to raise money to promote research to find treatments or a cure for Niemann-Pick Disease Type C: and to provide support to individuals and families affected by this disease through existing channels.

A Star for Ben Foundation Inc

STAR Foundation is a 501(c)3 non-profit, is dedicated to Salla disease research, treatment, education, awareness, and family networks.

Greater San Diego Biological Solutions

Greater San Diego Biological Solutions is a California nonprofit public benefit corporation organized for the primary purpose of delivering practical biological solutions to meet critical global health needs.

EHLERS-DANLOS SOCIETY

Advancing and accelerating research and education in Ehlers-Danlos syndromes and HSD.

• Kidney

• 180.

INTERNATIONAL SOCIETY OF GLOMERULAR

THE INTERNATIONAL SOCIETY OF We envision a future where all people with glomerular kidney disease can access accurate early diagnosis and suitable treatment to preserve the health of their kidneys.