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Similar organisations to Fibrolamellar Registry Inc

Community Rebuilding
  • Other Philanthropy, Voluntarism, and Grantmaking Foundations N.E.C.

  • 1567.

LYMPHATIC MALFORMATION INSTITUTE

TO IDENTIFY, ORGANIZE AND FUND RESEARCH AND STUDIES TO ADVANCE THE UNDERSTANDING OF THE HUMAN LYMPHATIC SYSTEM AND ITS MALFORMATIONS LMI Our Impact Research Funding To Date 8000000 in research grants Research Publications 20 publications resulting from 45 funded projects and presentations conducted by 36 investigators Research Network 40 investigatorsover 10 countries represented Complex Lymphatic Anomaly CLA is an umbrella term encompassing four overlapping but distinct rare diseases of the lymphatic system Gorham Stout Disease GSD Generalized Lymphatic Anomaly GLA Kaposiform Lymphangiomatosis KLA and Central Conducting Lymphatic Anomaly CCLA.

Location

Bethesda

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Community Rebuilding
  • Professional Societies & Associations

  • 1568.

International Society for Therapeutic Ultrasound Inc

ISTU is a non-profit organization founded in 2001 to increase and diffuse knowledge of therapeutic ultrasound to the scientific and medical community.

Social Rank

682

Location

Seattle

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Community Rebuilding

Am. Assoc. of Pro Life Obstetricians and Gynecologists

We're the American Association of Pro Life OBGYNs.

Social Rank

5426

Location

Eau Claire

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Community Rebuilding
  • Heart and Circulatory System

  • 1570.

Family Heart Foundation

The Family Heart Foundation is a patient-driven nonprofit focused on advocacy, research and education of FH and elevated Lipoprotein(a).

Social Rank

24325

Location

Fernandina Beach

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Community Rebuilding

The NoahStrong Foundation

This Foundation was created for Noah Hays who was first diagnosed with Stage 4 Cancer in 2015.

Social Rank

3900

Location

Matthews

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Community Rebuilding
  • Neurology, Neuroscience

  • 1572.

Inadcure Foundation Inc

The INADcure Foundation is a 501c3 nonprofit charity whose mission is to support the development of treatments, including a cure, for Infantile Neuroaxonal Dystrophy (INAD) and other forms of PLA2G6-related neurodegeneration (PLAN).

Location

FAIRFIELD

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Community Rebuilding

WIEDEMANN-STEINER SYNDROME FOUNDATION

The Wiedemann-Steiner Syndrome Foundation provides education, fosters community, and stimulates research to improve the lives of everyone impacted by #WSS.

Social Rank

2444

Location

Sacramento

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Community Rebuilding
  • Cancer

  • 1574.

CANCER CARTEL

Cancer Cartel was founded with the important mission to provide financial resources and relief to those fighting cancer.

Social Rank

1660

Location

ENUMCLAW

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Community Rebuilding
  • Human Services - Multipurpose & Other N.E.C.

  • 1575.

Cancer Pathways

Camp Sparkle registration now open. Camp Sparkle 2025 registration is now open.

Location

Seattle

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