BETTER UNDERSTANDING OF DOWN SYNDROME

Our purpose is to: Educate, inform and support families who have loved ones with Down syndrome.

JETT FOUNDATION INC

Empowering families. Fighting Duchenne muscular dystrophy.

• Cancer

• 1533.

Pituitary Network Association

The PNA, founded in 1992, is the world's largest nonprofit patient advocacy organization devoted to early diagnosis, treatment and cure for pituitary diseases.

ALD Alliance

Fighting to pass Aidan's Law for National Newborn Screening for all RUSP conditions.

• Single Organization Support

• 1535.

Stasis Foundation

To conduct and support scientific research and public education in the biomedical sciences with the goal of extending the healthy human lifespan.

• Alliance/Advocacy Organizations

• 1536.

Chromophobe and Oncocytic Tumor Alliance

The Chromophobe and Oncocytic Tumor Alliance (COA) is a non-profit organization with a mission to bring together and support a community of patients, organizations and researchers dedicated to advancing the understanding, research and treatment of Chromophobe Renal Cell Carcinoma and other oncocytic tumors.

NO BABY BLISTERS

No Baby Blisters is working to finally cure the excruciating pain and death to babies with genetic blistering skin diseases, especially to save EB (Epidermolysis bullosa) babies from blisters, skin loss, extreme pain, and death.

MUSCULAR DYSTROPHY FAMILY

The Muscular Dystrophy Family Foundation uses the power of giving to increase the quality of life and independence of people with muscular dystrophy—and empower their families—through advocacy, education, and financial assistance Living with a neuromuscular disease means facing new challenges every day.

• Alliance/Advocacy Organizations

• 1539.

GENERATION PATIENT INC

Generation Patient facilitates events, online programs, and advocacy initiatives for young adults with chronic and rare conditions to ensure they have the opportunities and resources to thrive.