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Similar organisations to Fibrolamellar Registry Inc

Community Rebuilding

Vassar Brothers Medical Center

Pursuing better health for #HudsonValley + #WesternConnecticut ❤️ Reimagining care, focused on what matters to you.

Social Rank

32000

Location

Poughkeepsie

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Community Rebuilding
  • Alliance/Advocacy Organizations

  • 1496.

ARPKD/CHF Alliance

The ARPKD/CHF Alliance is only organization in the world solely committed to both Autosomal Recessive Polycystic Kidney Disease and Congenital Hepatic Fibrosis.

Social Rank

103

Location

Kirkwood

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Community Rebuilding
  • Single Organization Support

  • 1497.

FOUNDATION FOR INTERNATIONAL MEDICAL RELIEF OF CHILDREN

FIMRC is a global nonprofit organization committed to improving healthcare access in medically underserved communities.

Social Rank

22075

Location

Philadelphia

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Community Rebuilding
  • Single Organization Support

  • 1498.

University of Iowa Research Foundation

THE UNIVERSITY OF IOWA RESEARCH FOUNDATION'S (UIRF) MISSION IS TO: ADVANCE, DEVELOP, INCREASE AND EXTEND THE PROGRESS OF SCIENCE AND USEFUL ARTS THROUGH ENCOURAGING AND ASSISTING INVESTIGATION, RESEARCH AND EDUCATION AT THE STATE UNIVERSITY OF IOWA BY FURNISHING THE MEANS, METHODS AND AGENCIES BY WHICH IDEAS, CREATIONS, DISCOVERIES, INVENTIONS AND PROCESSES MAY BE PROTECTED AND THE USES THEREOF DETERMINED AND SAFEGUARDED FOR THE PUBLIC, AND TO MANAGE, LICENSE AND DISPOSE OF PROPRIETARY RIGHTS IN IDEAS, CREATIONS, DISCOVERIES, INVENTIONS AND PROCESSES OF ANY NATURE; TO RECEIVE BY GIFT, GRANT, DEVISE OR BEQUEST, AND TO ACQUIRE BY PURCHASE, LEASE, EXCHANGE OR OTHERWISE, PROPERTY, BOTH REAL AND PERSONAL, EITHER AS ABSOLUTE OWNER OR AS TRUSTEE THEREOF, AND TO MANAGE AND ADMINISTER THE SAME; TO MAKE CONTRIBUTIONS, GRANTS, GIFTS AND TRANSFERS OF PROPERTY, BOTH REAL AND PERSONAL, EITHER OUTRIGHT OR IN TRUST, TO OR FOR THE BENEFIT OF THE STATE UNIVERSITY OF IOWA.

Location

Iowa City

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Community Rebuilding
  • Birth Defects, Genetic Diseases

  • 1499.

Hemophilia Outreach of Wisconsin Inc

Helping Families Affected by Bleeding Disorders Comprehensive Care Serving Wisconsin Michigan What Drives Us Delivering FamilyOriented Care At the Hemophilia Outreach Center we are dedicated to providing comprehensive medical care and advocacy for individuals living with a bleeding disorder.

Location

Green Bay

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Community Rebuilding
  • Alliance/Advocacy Organizations

  • 1500.

Rwe Alliance Inc

THE RWE ALLIANCE ENVISIONS A FUTURE IN WHICH DATA FROM ELECTRONIC HEALTH RECORDS, ADMINISTRATIVE CLAIMS AND BILLING DATA, PRODUCT AND DISEASE REGISTRIES, PERSONAL DEVICES, WEARABLES, AND HEALTH APPLICATIONS WILL BE USED TO GENERATE EVIDENCE TO SUPPORT REGULATORY DECISION MAKING RELATED TO MEDICAL PRODUCT SAFETY AND EFFECTIVENESS.

Location

Chicago

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Community Rebuilding

Will Rodgers Liver Health Organization

MISSION: Create a movement for liver health and remove barriers for liver disease treatment To bring awareness, treatment and medical advancements to beat liver disease.

Social Rank

136

Location

Mooresville

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Community Rebuilding

CureSHANK

CureSHANK's mission is to accelerate the development of treatments and cures for Phelan-McDermid Syndrome and other SHANK-related disorders.

Social Rank

308

Location

Beverly Hills

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Community Rebuilding

LUPUS FOUNDATION OF AMERICA

LFA, SE Region (FL, SC, TN, AL, KY) is devoted to solving the mystery of #lupus while giving support to those living with it and their loved ones.

Social Rank

19295

Location

CHARLOTTE

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