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Similar organisations to Progressive Familial Intrahepatic Cholestasis

Community Rebuilding
  • Birth Defects, Genetic Diseases

  • 145.

Ella Foard Foundation for Rett Syndrome

The Ella Foard Foundation for Rett Syndrome was founded by family and friends to champion a cause to find a cure for Rett Syndrome.

Social Rank

1142

Location

Charlotte

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Community Rebuilding

THE CLINIC FOR SPECIAL CHILDREN INC

A nonprofit comprehensive medical practice focused on treating & researching rare genetic disorders.

Social Rank

3100

Location

Intercourse

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Community Rebuilding
  • Alzheimer's

  • 147.

Ftd Disorders Registry LLC

The Registry is an online database to collect information from those affected by all types of frontotemporal degeneration (FTD).

Social Rank

1663

Location

King of Prussia

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Community Rebuilding
  • Fund Raising and/or Fund Distribution

  • 148.

COALITION TO CURE CHD2 INC

Fighting for our kiddos, and others, with CHD2-related neurodevelopmental disorders.

Social Rank

586

Location

Dallas

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Community Rebuilding
  • Fund Raising and/or Fund Distribution

  • 149.

UCSF BENIOFF CHILDREN'S HOSPITALS FOUNDATION

Nationally ranked for pediatric expertise, UCSF Benioff Children’s Hospital Oakland makes sure that your child receives the most effective treatment and care.

Social Rank

20459

Location

Oakland

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Community Rebuilding
  • Birth Defects, Genetic Diseases

  • 150.

CTNNB1 SYNDROME AWARENESS WORLDWIDE

CTNNB1 Syndrome refers to complications resulting from either a mutation or deletion of the CTNNB1 gene.

Social Rank

77

Location

Dayton

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Community Rebuilding
  • Birth Defects, Genetic Diseases

  • 151.

Cystic Fibrosis Foundation

Recognized globally, the CF Foundation has led the way in the fight against cystic fibrosis, fueling extraordinary medical and scientific progress.

Social Rank

271185

Location

Portland

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Community Rebuilding
  • Fund Raising and/or Fund Distribution

  • 152.

THE BOWYER BATTLE

Bringing hopeto families affected by Cystic Fibrosis.

Location

GILBERT

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Community Rebuilding
  • Fund Raising and/or Fund Distribution

  • 153.

PBD Project

Our goal is to find a longterm solution for patients with Peroxisome Biogenesis Disorders.

Location

Bethesda

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