GALACTOSEMIA FOUNDATION

A national, nonprofit, volunteer organization providing information, support and networking opportunities to those impacted by galactosemia since 1985 Galactosemia Foundation is a national, non-profit, volunteer organization whose mission is to provide information, support, and networking opportunities to families affected by galactosemia.

• Birth Defects, Genetic Diseases

• 146.

Cystic Fibrosis Foundation

Recognized globally, the CF Foundation has led the way in the fight against cystic fibrosis, fueling extraordinary medical and scientific progress.

• Diseases, Disorders, Medical Disciplines N.E.C.

• 147.

National Niemann-Pick Disease Foundation

National Niemann-Pick Disease Foundation The NNPDF offers support and guidance to families and patients of those affected by Niemann-Pick Dise Mission: We are a non-profit group dedicated to supporting and empowering patients and families affected by Niemann-Pick disease through education, collaboration and research.

• Specifically Named Diseases

• 148.

3Q29 Foundation

3q29 Foundation Creating a path to treatment for chromosome 3q29 syndromes through funding research communitybuilding and increasing access to information and resources.

• Promotion of Business (Chambers of Commerce)

• 149.

Oregon Chapter American College of Cardiology

To build a cohesive Cardiovascular community throughout the State of Oregon, in order to locally promote education, research, use of guidelines and influence health care policy.

• Cultural/Ethnic Awareness

• 150.

May5Foundation

The May5Foundation and founder Dr. Alexia Mays are committed to supporting the communities of sickle cell, grief & loss, thru research ,advocacy &awareness The May5Foundation is centered in the values of dedication to education,community and service WE DO AMAYSING THINGS Programs and Events Support Our Efforts Who We Are More Community Events 2024 Warrior of The Year .

• Patient Services�Entertainment, Recreation

• 151.

HLH Heroes Foundation Not for Profit

"NO ONE FIGHTS ALONE" The mission of HLH Heroes Foundation is to provide support to individuals and families impacted by HLH.

• Professional Societies & Associations

• 152.

INTERNATIONAL BIOIRON SOCIETY

News Announcements posted January 10 2025 It is with great sadness that we send this email to inform you that our esteemed colleague Gary M.

• Alliance/Advocacy Organizations

• 153.

Progressive Familial Intrahepatic Cholestasis

PFIC advocacy and resource network Inc.