• Research Institutes and/or Public Policy Analysis

• 1369.

Yuba-Sutter Healthcare Council

The Yuba Sutter Healthcare Council Foundation is a non-profit association and programs provider.

INTERNATIONAL FOUNDATION FOR CDKL5 RESEARCH

This account used to avoid confusion by impersonation - please find us @CDKL5_IFCR To treat and cure CDKL5 Deficiency Disorder by funding scientific research, while helping affected individuals and their families to thrive.

• Epilepsy Research

• 1371.

Bridge the Gap

SYNGAP1 Foundation is a legacy page dedicated to preserving the work and mission of our 100% charitable nonprofit in the USA, focused on #SYNGAP1 To serve, educate and fund research for families coping with the effects of SYNGAP mutations.

• Fund Raising and/or Fund Distribution

• 1372.

Breathe 4 ALS Inc

The mission of Breathe 4ALS is to fund research for genetic ALS, which accounts for 10% of all ALS cases.

• Heart and Circulatory System

• 1373.

Healthy Heart Community Prevention Project Inc

Our mission is to promote heart health and to eliminate disparities associated with cardiovascular disease in vulnerable communities.

Ehlers-Danlos Research Foundation

We strive to promote evidence-based Neuromuscular and Musculoskeletal medicine for Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorder.

• Heart and Circulatory System

• 1375.

International Children's Heart Foundation

The mission of the International Children’s Heart Foundation (ICHF) is to bring the skills, technology and knowledge to cure and care for children with congenital heart disease in developing nations.

• Other Medical Research N.E.C.

• 1376.

Arc Research Institute

Our mission is to accelerate scientific progress, understand the root causes of disease, and narrow the gap between discoveries and impact on patients.

• Birth Defects, Genetic Diseases

• 1377.

BPAN WARRIORS

Community resources, research and CONNECTION for BPAN Warrior families (WDR45, NBIA, Rare Disease, Parkinsons, Dementia, Epilepsy, Neurodegeneration, Genetics) BPAN Warriors is a growing international community of individuals who have loved ones directly affec BPAN WARRIORS CONNECT COLLABORATE CURE HOME RESEARCH PATIENT RESOURCES OUR TRIBE OUR PARTNERS DONATE RARE POV BLOG More 414 909BPAN RAREX unveils plan to radically change data collection and sharing to accelerate advances for patients in rare disease How One Rare Disease Advocate Learned to Look Across Diseases Study Makes Economic Case for Benefits of Data Sharing to Improve Diagnosis and Treatment of Rare Disease Patients Harnessing Machine Learning to Improve Diagnosis and Treatment of Rare Diseases Making Collaboration the Rule Rather than the Exception Why Data Sharing Is Critical for Accelerating Progress in Rare Disease PatientPowered Registry Boosts the Study of a Rare Disease What is Data Governance.